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Latest News
July 25, 2014   Collaborative Study to Understand Patient Perspectives on Meaningful Clinical Trial Benefit to Continue in Cities Across The United States.
Families of SMA, the SMA Foundation, and several industry partners are co-funding this research project to better understand which clinical trial outcomes are particularly meaningful to SMA patients.
 
July 25, 2014   U.S. Senate Committee Encourages NIH to Continue SMA-Related Research Initiatives
 
July 22, 2014   Families of Spinal Muscular Atrophy Releases a New Care Series Booklet for Families about The Musculoskeletal System
 
July 16, 2014   Families of SMA Releases a New Request for Proposals for Clinical Care Research Projects in Spinal Muscular Atrophy
 
July 11, 2014   National Institutes of Health Releases Three Grant Opportunities Related to Newborn Screening for Disease like Spinal Muscular Atrophy.
These grant opportunities respond to years of report language endorsed by Families of SMA in the annual congressional appropriations bills that funds the NIH.
 
July 10, 2014   Families of Spinal Muscular Atrophy Continuing Medical Education Conference Presentations Now Available
 
July 9, 2014   Families of SMA Releases a Request for Proposals for New Funding of Research Projects for Spinal Muscular Atrophy.
Families of SMA is pleased to announce that we are accepting grant applications for funding of research projects, under a competitive review by our Scientific Advisory Board. Up to $700,000 will be committed in this round of funding.
 
July 7, 2014   Attendee Video from The 2014 Annual Spinal Muscular Atrophy Conference Online.
 

 
 
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