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Latest News
May 23, 2013   Conference Booklet and Detailed Agenda for the 2013 Annual Spinal Muscular Atrophy Conference Now Available Online.
This 80 page booklet includes the detailed agenda of the 44 conference workshops, with information on each speaker, as well as all events and conference details.
 
May 21, 2013   VALIANT Clinical Trial of Ambulatory Type III Spinal Muscular Atrophy Patients Conducted at Ohio State University Published in Muscle and Nerve.
 
May 7, 2013   OKI Chapter Reaches Milestone 10th Annual Walk-n-Roll for Families of SMA
 
May 6, 2013   Annual SMA Conference Registration Deadline Now Only Three Days Away.
Registration has been filling quickly with this record breaking West Coast Conference.
 
May 2, 2013   Families of SMA Awards $150,000 to Dr. Burghes and Dr. Lorson to Investigate New Antisense Therapies for Spinal Muscular Atrophy.
 
May 1, 2013   Milestone Events Reaching New Heights for Families of Spinal Muscular Atrophy
This spring some of our key events are celebrating their 10th year in support of funding a treatment and a cure for SMA.
 
April 30, 2013   Families of SMA 2013 Update on the Spinal Muscular Atrophy Drug Pipeline.
15 new drugs now in development for SMA. 3 in active clinical trials. 11 companies investing in SMA drug programs.
 
April 26, 2013   2013 Walk n Roll to Cure SMA Update from Families of Spinal Muscular Atrophy.
Over 4,500 participants already registered.
 

For Newly Diagnosed Information and Care Packages call us at
(800) 886-1762 or email
infopack@fsma.org

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