Families of Spinal Muscular Atrophy is dedicated to creating a treatment and cure by:
- Funding and advancing a comprehensive research program;
- Supporting SMA families through networking, information and services;
- Improving care for all SMA patients;
- Educating health professionals and the public about SMA;
- Enlisting government support for SMA;
- Embracing all touched by SMA in a caring community.
Our vision is a world where Spinal Muscular Atrophy is treatable and curable.

A small group of parents started Families of SMA in 1984.  They wanted to raise funds for SMA research to cure the disease, and support all affected families.  Back then, very little was known about Spinal Muscular Atrophy.  Very little research was being conducted.  No one knew the cause of the disease let alone how to find a treatment and a cure.  Patients and families affected by SMA were on their own and had little hope.  Today, FSMA has a different story to tell.  Families of SMA has created hope for our community that did not exist in 1984.  We have raised and funded over $50 million for SMA research.  Our support comes from generous individual donations and numerous fundraising events held by volunteer families and our Chapters.

Click here for some quick facts about SMA.
Click here for information on the patient services and support we provide.
Click here for details on the research programs we fund.

Our Specific Goals for 2010 Include:
-To expand our investment in critical Spinal Muscular Atrophy research to grow the drug and clinical pipeline to increase our likelihood of finding a treatment and cure.
-To provide direct support and services to all families with newly diagnosed children by sending them packets of important information and pieces of critical equipment. 
-Host the nation’s largest gathering of those affected by SMA and the researchers working towards a cure at the 2010 Annual SMA Conference, bringing together hundreds of families and researchers from around the world to share ideas and hope for the future.

Families of SMA funds and directs the leading SMA research programs. 
Our successful results and progress from basic research to drug discovery programs to clinical trials provides real hope for families and patients.
-Families of SMA has funded 5 multi-center clinical trials for existing drugs that have potential for SMA.
-FSMA has funded 5 leading new drug development programs for therapies specially designed to treat SMA.
-FSMA has invested significant resources into alternative approaches that show promise to cure SMA.

Click here to see the progress we made in 2009.

Click here to see our Fundraising Stars!

We are a non-profit, 501(c)3 tax exempt organization.  Federal ID# 36-3320440.
Today we have 27 Chapters throughout the United States and over 65,000 members and supporters.  We are a collaborative organization where families and friends and researchers are all working together towards the same goal.

We encourage everyone touched by SMA to join our organization.   All parents of children with SMA, all people directly affected with SMA, all relatives, friends and colleagues of those affected, are welcome to join us as we work together to find a treatment and cure for SMA.