|
Dear Friend: Thank you for joining our community in the battle against SMA. You are now part of Families of SMA, a network of families, researchers, clinicians and other professionals who are determined to make a difference. FSMA is here for you at whatever level you need. FSMA is here to help provide you with information, to connect you with other families, and to provide resources to assist in the care of a family member with SMA. As caring parents and professionals, we can offer support and understanding when it is most needed. Families of SMA has 29 chapters throughout the US with dedicated family volunteers. These committed and experienced individuals are available to provide support and advice on a local level in your community. Families of SMA offers an online networking site called “SMA Community Connections” which allows families to start connecting and sharing with other SMA families and researchers. This community site allows families from all over the world to connect with each other to chat, organize, and share stories, photos, news and information. The web site is www.SMACommunity.org. Knowing there are others out there fighting alongside you is incredibly empowering, and the advice and personal anecdotes can make a valuable difference in the lives of you and your family. FSMA has funded more than $50 million in research, including funding five drug discovery programs and five clinical trials. FSMA is aiming to fund two new preclinical drug development programs in 2011, with more to follow. These multi-million dollar collaborations will focus on innovative methods of developing novel therapies for SMA, including both biologic and small molecule approaches. We continue to increase our funding commitments each year, thanks in large part to the funds raised by our volunteers. This amazing group of chapters and individuals pools their energies and talents in a way that provides support and encouragement and helps make us one of the largest private funders of SMA research. Founded by a group of parents in 1984, FSMA will provide unbiased support for all those dealing with SMA and will fund the most promising research. Please don’t hesitate to contact us with any questions. Sincerely,
Colleen and Kenneth.
Families of SMA
925 Busse Road
Elk Grove Village, IL 60007 (800) 886-1762 (US and Canada only)
(847) 367-7620 (all other locations)
colleen@fsma.org
Kenneth@fsma.org
| 
