| August 22, 2008 |
Next Round for American Express Project to Cure Spinal Muscular Atrophy
We are on to round two!! We now have until September 1st to collect as many votes as possible. Click here to vote and help campaign for Cure Spinal Muscular Atrophy by promoting it and telling all of your friends and family members about it. We are currently 13th out of 1190!
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| August 16, 2008 |
Nominate to Cure Spinal Muscular Atrophy with American Express!
Help this project to reach the Top 25. The project is currently 27 in the rankings! Campaign for Cure Spinal Muscular Atrophy by promoting it and telling all of your friends and family members about it. Click here for all the details.
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| June 13, 2008 |
Just Announced! - Curt Schilling to be Special Guest on SMA Awareness Day
Curt will be joining members of the SMA community for a special on-field ceremony at Fenway, and will also be participating in a meet and greet session for our VIP guests.
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| June 13, 2008 |
Sen. Kerry to Address Families of SMA Annual Conference via Video – Cosponsors SMA Legislation
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| June 13, 2008 |
New York State Proclaims August as SMA Awareness Month
Governor David A Paterson and State Senators issue a Legislative Resolution to the NYC/Long Island and Western New York FSMA Chapters! We thank State Senator Dean G. Skelos for all his efforts to make this happen.
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| June 13, 2008 |
FSMA is a recipient of a Google Grant award
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| June 5, 2008 |
Boston Red Sox to Play Ball! for SMA
The Red Sox are hosting the SMA community on Saturday 21st at legendary Fenway Park. This will be an incredible event to raise awareness and funds for SMA research.
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| May 27, 2008 |
Proclamation from Mayor Thomas Menino
In connection with the annual conference, June 21st is declared SMA Awareness Day in the City of Boston.
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| May 12, 2008 |
New Edition of Directions Newsletter Now Available Online
This edition contains information on the annual conference and also many new family photos.
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| April 22, 2008 |
New Clinical Trial for SMA
New Multi-Center Trial of Valproic Acid and Carnitine in Infants with Type I Spinal Muscular Atrophy.
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| April 17, 2008 |
New Web Site Help
Please email info@fsma.org or call (800) 886-1762 if you have any problems with the new web site.
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| February 19, 2008 |
Stem Cell Press Release
Collaboration between FSMA; University of California, Irvine; and California Stem Cell for safety studies for stem cell therapy in SMA.
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| January 2, 2008 |
HELP FSMA RAISE $300,000 for Stem Cell Research!
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| January 1, 2008 |
The 2007 Families of SMA Wall of Strength
Our 2007 online annual campaign.
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