| December 23, 2008 |
New Families of Spinal Muscular Atrophy Care Booklet.
For Parents of Infants Newly Diagnosed with SMA Type I.
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| December 22, 2008 |
Last Minute Ideas to Help Support Spinal Muscular Atrophy Research
Read more here.
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| December 15, 2008 |
Families of Spinal Muscular Atrophy 25th Anniversary Conference
2009 Hotel Reservations Now Open.
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| December 8, 2008 |
Mayor Bloomberg Welcomes Families of Spinal Muscular Atrophy Chapter:
New York City Long Island Chapter at Awards Reception.
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| December 5, 2008 |
Families of Spinal Muscular Atrophy Celebrates 25th Anniversary
See the full report here.
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| December 5, 2008 |
Families of Spinal Muscular Atrophy Letter Writing 2008
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| December 3, 2008 |
New edition of Families of Spinal Muscular Atrophy support publication “Directions”
Now online.
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| November 12, 2008 |
Spinal Muscular Atrophy Mom Wins Prize from Martha Stewart
Second Annual 'Dreamers Into Doers' Awards.
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| October 31, 2008 |
Design Home 2008 to Support Spinal Muscular Atrophy Research
See the video here from Minnesota Viking Mike Morris.
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| October 29, 2008 |
New Pilot Study of Biomarkers for Spinal Muscular Atrophy
Click here for details on the new study.
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| October 29, 2008 |
New Gifts to Support Research for Spinal Muscular Atrophy
Click here to see how to order.
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| October 15, 2008 |
New Spinal Muscular Atrophy Registry Website Launched
Read the press release from the SMA Registry.
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| October 6, 2008 |
Families of Spinal Muscular Atrophy Thanks ABC!
Click here to see details.
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| September 16, 2008 |
Trevor Broton and His Family Were Featured in a News Story on Their Local ABC Station
Nine-month-old Trevor was diagnosed with Spinal Muscular Atrophy Type I four months ago. He is shown in this news story in his swing and stroller, which were sent to him by Families of Spinal Muscular Atrophy.
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| September 10, 2008 |
News Article about College Student Brittany Saylor and Dr. Mary Schroth
A great story about the strong bond between the two that has been beneficial to both patient and doctor. Brittany was Schroth's first Spinal Muscular Atrophy patient.
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| September 10, 2008 |
Spinal Muscular Atrophy Family Extreme Makeover: Home Edition Show to Air October 5th
Click here for details.
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| August 22, 2008 |
Video Message from Senator Clinton at Shea Stadium.
Click here to see the address given at Spinal Muscular Atrophy Awarness Day with The Mets.
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| August 22, 2008 |
Next Round for American Express Project to Cure Spinal Muscular Atrophy
We are on to round two!! We now have until September 1st to collect as many votes as possible. Click here to vote and help campaign for Cure Spinal Muscular Atrophy by promoting it and telling all of your friends and family members about it. We are currently 13th out of 1190!
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| August 16, 2008 |
Nominate to Cure Spinal Muscular Atrophy with American Express!
Help this project to reach the Top 25. The project is currently 27 in the rankings! Campaign for Cure Spinal Muscular Atrophy by promoting it and telling all of your friends and family members about it. Click here for all the details.
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| July 31, 2008 |
Congratulations to Kathy LeMieux and Morgan Joyce Kelly!
Kathy LeMieux, who is currently Ms. Wheelchair Michigan, recently competed in the Ms. Wheelchair America pageant. 10 year old Morgan Joyce Kelly has won the senior division of the Pre-Teen Florida scholarship competition. For more information, click here.
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| July 15, 2008 |
Spinal Muscular Atrophy Family Selected for Extreme Home Makeover!
The Akers Family from Ohio was surprised with the door knock from the Extreme Makeover team. Check here for regular updates and to donate in honor of the family!
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| July 10, 2008 |
Curt Schilling Supports Families of Spinal Muscular Atrophy at Fenway Park
Listen to the fantastic speech give by Red Sox pitcher Curt Schilling in support of Families of SMA at Fenway Park. “……if there is going to be a final dollar, someone is going to donate that final dollar that will make it happen. I would love to have it be mine……..”
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| June 27, 2008 |
New Page Created for 2008 Conference Presentations, Photos, Workshops and Links.
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| June 17, 2008 |
Governor Deval Patrick Proclaims June 21st SMA Awareness Day for the Commonwealth of Massachusetts
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| June 13, 2008 |
Just Announced! - Curt Schilling to be Special Guest on SMA Awareness Day
Curt will be joining members of the SMA community for a special on-field ceremony at Fenway, and will also be participating in a meet and greet session for our VIP guests.
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| June 13, 2008 |
Sen. Kerry to Address Families of SMA Annual Conference via Video – Cosponsors SMA Legislation
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| June 13, 2008 |
New York State Proclaims August as SMA Awareness Month
Governor David A Paterson and State Senators issue a Legislative Resolution to the NYC/Long Island and Western New York FSMA Chapters! We thank State Senator Dean G. Skelos for all his efforts to make this happen.
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| June 13, 2008 |
FSMA is a recipient of a Google Grant award
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| June 5, 2008 |
Boston Red Sox to Play Ball! for SMA
The Red Sox are hosting the SMA community on Saturday 21st at legendary Fenway Park. This will be an incredible event to raise awareness and funds for SMA research.
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| June 2, 2008 |
Sponsors Come Out in Force to Support the Boston FSMA Conference!
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| May 27, 2008 |
Proclamation from Mayor Thomas Menino
In connection with the annual conference, June 21st is declared SMA Awareness Day in the City of Boston.
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| May 12, 2008 |
New Edition of Directions Newsletter Now Available Online
This edition contains information on the annual conference and also many new family photos.
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| April 24, 2008 |
Groups Release Family Version of SMA Standard of Care
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| April 22, 2008 |
New Clinical Trial for SMA
New Multi-Center Trial of Valproic Acid and Carnitine in Infants with Type I Spinal Muscular Atrophy.
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| April 17, 2008 |
New Web Site Help
Please email info@fsma.org or call (800) 886-1762 if you have any problems with the new web site.
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| February 19, 2008 |
Stem Cell Press Release
Collaboration between FSMA; University of California, Irvine; and California Stem Cell for safety studies for stem cell therapy in SMA.
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| January 2, 2008 |
HELP FSMA RAISE $300,000 for Stem Cell Research!
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| January 1, 2008 |
The 2007 Families of SMA Wall of Strength
Our 2007 online annual campaign.
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