| December 31, 2009 |
Families of Spinal Muscular Atrophy would like to wish everyone a Happy New Year.
Click here to see some of the milestones we were able to reach with your support.
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| December 4, 2009 |
New Edition of Spinal Muscular Atrophy Family Support Newsletter Now Available Online from Families of Spinal Muscular Atrophy.
Click here to download a copy.
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| December 4, 2009 |
New Profiles for the Twenty Five Voices of Spinal Muscular Atrophy from Families of SMA.
The profiles are from The Sutker Family and Brunhilde Wirth, Ph.D.
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| November 20, 2009 |
Updated Genetics of Spinal Muscular Atrophy Booklet Available Now
Click here to download a copy.
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| October 2, 2009 |
Registration for the 2010 Annual Spinal Muscular Atrophy Conference is now available.
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| October 1, 2009 |
2009 H1N1 Flu and Spinal Muscular Atrophy.
Information for SMA Patients and Families.
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| September 21, 2009 |
Families of Spinal Muscular Atrophy has been selected to be one of the charities featured on NASCAR driver Jimmie Johnson’s Helmet of Hope.
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| September 10, 2009 |
Families of SMA Congratulates the Gaynor Family from New York on Amazing Fundraising and Awareness Raising Success.
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| September 9, 2009 |
September Profiles for the Twenty Five Voices of Spinal Muscular Atrophy from Families of SMA.
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| August 21, 2009 |
2010 Annual Spinal Muscular Atrophy Conference Location Announced.
Santa Clara, California.
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| August 17, 2009 |
The Spinal Muscular Atrophy Community Mourns the Loss of Tim Utzat.
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| August 6, 2009 |
New Profiles for the Twenty Five Voices of Spinal Muscular Atrophy from Families of SMA.
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| July 29, 2009 |
August is Spinal Muscular Atrophy Awareness Month
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| July 23, 2009 |
25th Anniversary Spinal Muscular Atrophy Conference Presentations and Videos Now Available Online.
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| July 17, 2009 |
Three New Profiles for the Twenty Five Voices of Spinal Muscular Atrophy
Mary Schroth, M.D., Audrey Lewis, and Arthur Burghes, Ph.D.
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| June 26, 2009 |
25th Anniversary Conference Banquet Video Online Now.
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| June 25, 2009 |
Note for SMA Conference Attendees on Swine Flu
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| June 16, 2009 |
New Guide to Spinal Muscular Atrophy Research from Families of SMA
Click here to download.
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| June 15, 2009 |
Families of Spinal Muscular Atrophy New Booklet of Patient Services and Family Support.
Click here to download.
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| June 12, 2009 |
United States Senator Sherrod Brown
Welcomes Families of Spinal Muscular Atrophy for 25th Anniversary Conference.
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| June 7, 2009 |
Families of Spinal Muscular Atrophy June Profiles for the Twenty Five Voices of SMA.
Read the profiles here.
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| May 29, 2009 |
Twenty Five Voices of Spinal Muscular Atrophy.
Click here to see the new profiles.
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| May 27, 2009 |
Mayor of the City of Cincinnati Proclaims Families of Spinal Muscular Atrophy Week.
Click here to see the conference proclamation!
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| May 20, 2009 |
25th Anniversary Families of Spinal Muscular Atrophy Conference – Sponsors, Grants and Vendors.
Click here to see all the amazing organizations that are supporting our community.
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| May 19, 2009 |
Families of Spinal Muscular Atrophy is Pleased to Announce its New Medical Advisory Council.
Click here to read about the members.
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| May 6, 2009 |
Spinal Muscular Atrophy Conference Keynote Speaker Representative Steve Driehaus Announced.
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| May 6, 2009 |
Families of Spinal Muscular Atrophy 25th Anniversary Conference Hotel Update.
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| May 5, 2009 |
Spinal Muscular Atrophy News to Shout About.
New Edition of Families of Spinal Muscular Atrophy Newsletter Available Online.
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| May 4, 2009 |
United States Senator George V. Voinovich Welcomes Families of Spinal Muscular Atrophy for 25th Anniversary Conference.
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| May 2, 2009 |
Swine Flu and Spinal Muscular Atrophy
Information for SMA Patients and Families.
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| April 29, 2009 |
Send an ecard to Support Families of Spinal Muscular Atrophy.
Mother’s Day is Sunday, May 10th.
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| April 17, 2009 |
Families of Spinal Muscular Atrophy Conference: Update on Speakers, Sponsors and Support Programs.
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| April 17, 2009 |
New Gifts to Support Families of Spinal Muscular Atrophy.
Click here to order.
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| April 8, 2009 |
Families of Spinal Muscular Atrophy Announces New Support Program for Newly Diagnosed SMA Families
Click here for details.
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| April 7, 2009 |
Families of Spinal Muscular Atrophy Releases New Profiles for the 25 Voices of SMA
Click here.
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| March 31, 2009 |
Spinal Muscular Atrophy Public Service Announcements
Families of SMA OKI Chapter.
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| March 13, 2009 |
New Profiles for 25 Voices of Spinal Muscular Atrophy Released
Two profiles have just been posted for The Rappoport Family and for Hans Keirstead, Ph.D.
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| March 4, 2009 |
Detailed Schedule for the Families of Spinal Muscular Atrophy Conference Announced.
25th Anniversary Family and Professional Conference.
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| February 27, 2009 |
25 Voices of Spinal Muscular Atrophy
As part of our ongoing celebration of the 25th Anniversary of Families of SMA we will be spotlighting "25 Voices of SMA" throughout the year.
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| February 25, 2009 |
Families of Spinal Muscular Atrophy Welcomes Three New Chapters
Utah, South Florida, and Greater Florida join our community.
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| February 18, 2009 |
Families of Spinal Muscular Atrophy Releases New Care Booklet
Respiratory Care for Children with SMA.
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| January 28, 2009 |
Families of Spinal Muscular Atrophy 25th Anniversary Conference Registration Now Available.
Find all the details here.
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| January 27, 2009 |
Families of Spinal Muscular Atrophy New Medical Advisory Council.
Call for Applications.
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| January 19, 2009 |
Families of Spinal Muscular Atrophy Launches New Ask the Expert Service
Read here to find out more.
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| January 7, 2009 |
Screenings of Stem Cell Documentary The Accidental Advocate in 15 Cities.
Click here for details.
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