| Dec 30 2010 |
Families of Spinal Muscular Atrophy 2011 Wall of Strength Currently Has Raised Over a Quarter of a Million Dollars.
For SMA Research and Family Support. What Your Support Helps Us Achieve.
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| Dec 28 2010 |
New Edition of the Families of SMA Directions Newsletter Now Available Online
Click here to download a copy.
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| Dec 21 2010 |
Families of SMA Offers a Record Number of Scholarships for Families to Attend the 2011 Annual SMA Conference.
Over 300 Conference Scholarships have already been given to SMA families to attend this magical conference.
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| Dec 10 2010 |
Summer and Fall Fundraisers Hosted by SMA Families Raise Over $1.1 Million for Spinal Muscular Atrophy Research and Support!
Since our last update in June, SMA Families have organized 135 fundraising events raising almost $1,170,000 for the important research and critical family support programs that Families of SMA carries out.
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| Sep 24 2010 |
Families of Spinal Muscular Atrophy Welcomes the Georgia Chapter
Click here to learn more about our new Georgia Chapter, or to find a chapter in your area.
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| Sep 16 2010 |
Families of Spinal Muscular Atrophy Announces Applications for 2011 SMA Conference Scholarships Now Available.
FSMA will once again be offering SMA families the chance to receive a financial need based conference registration scholarship to the 2011 Annual SMA Conference at Disney in Orlando, FL from June 23rd – June 26th.
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| Aug 26 2010 |
Volunteers Across the Country Will Hold 50 Fundraising Events in the Next Two Months for Families of SMA to Raise Funds for Research, Support and Hope
Make a difference and join in. Your efforts will help bring us closer to a treatment and make a profound difference in your local community and to the families everywhere affected by SMA.
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| Aug 20 2010 |
Families of Spinal Muscular Atrophy Announces Details on Conference Scholarships for Newly Diagnosed SMA Families.
Families of Spinal Muscular Atrophy is proud to again offer an amazing support program for all newly diagnosed SMA families to attend The Annual SMA Conference in Orlando, Florida on June 23rd – June 26th, 2011.
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| Aug 19 2010 |
New Merchandise from Families of SMA for Spinal Muscular Atrophy Awareness Month.
Click here to order.
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| Aug 6 2010 |
Families of Spinal Muscular Atrophy is Excited to Announce Registration for The 2011 Annual SMA Conference at Disney in Orlando, FL is Now Open!
Be a part of what will be the most memorable and magical SMA conference ever!
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| Aug 3 2010 |
August is National Spinal Muscular Atrophy Awareness Month.
Families of Spinal Muscular Atrophy has been coordinating a national awareness month for SMA since 1996. Raising awareness of SMA in the general public can help lead to increased resources for SMA research and better care for SMA patients.
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| Jul 27 2010 |
2010 Annual Spinal Muscular Atrophy Conference in Santa Clara, CA a Huge Success!
Conference workshop presentations and videos are now available online at www.SMACommunity.org.
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| Jul 12 2010 |
Families of Spinal Muscular Atrophy is Thrilled to Announce the 2011 Annual SMA Conference to be Held in Disney World June 23rd to 26th.
Click here for more details.
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| Jun 14 2010 |
Families of Spinal Muscular Atrophy Welcomes the Alaska Chapter
Click here to learn more about the Alaska Chapter, or to find a chapter in your area.
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| Jun 8 2010 |
New Edition of the Families of Spinal Muscular Atrophy Directions Newsletter Now Available Online
Click here to download a copy.
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| Jun 4 2010 |
Over 24 Countries Represented at the Upcoming Annual Spinal Muscular Atrophy Conference.
Click here to see all the countries represented.
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| May 14 2010 |
The 2010 Families of Spinal Muscular Atrophy Conference Thanks our Amazing Sponsors and Vendors.
Click here to see all the groups.
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| Apr 21 2010 |
2010 Annual Spinal Muscular Atrophy Conference Workshop Speakers Announced
Families of Spinal Muscular Atrophy is excited to announce the workshop speakers for the upcoming Annual SMA Conference in Santa Clara, California on June 24– June 27, 2010.
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| Apr 16 2010 |
Leading Researchers, Government Officials and Doctors to Present Latest Results and Answer Questions on Spinal Muscular Atrophy.
Click here to see the planned panel speakers for the final session at The Annual SMA Conference in June in California.
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| Mar 26 2010 |
Dramatic Increase in Demand for Equipment in the Families of Spinal Muscular Atrophy Equipment Pool Increases for SMA Families.
Funding Needed to Provide SMA Families with Necessary Equipment.
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| Mar 24 2010 |
Families of Spinal Muscular Atrophy has Awarded Over 200 SMA Family Members Scholarships to Attend The Annual SMA Conference in 2010.
These conference registration scholarships, valued at over $400 per individual, help SMA families to attend and experience the benefits of this amazing conference.
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| Mar 5 2010 |
Families of Spinal Muscular Atrophy Welcomes the New Mexico Chapter.
Click here to learn more about the New Mexico Chapter, or to find a chapter in your area.
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| Feb 19 2010 |
2010 Annual Spinal Muscular Atrophy Conference Patient Care and Family Support Workshops Announced.
Click here to see the agenda.
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| Feb 19 2010 |
Documentary on Spinal Muscular Atrophy Features Six SMA Individuals.
PBS series “Florida Crossroads” airs a moving documentary titled “Andy’s Army” inspired by the story of Andy Butler, who lost his battle with SMA last summer.
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| Feb 17 2010 |
Families of Spinal Muscular Atrophy Upgrades Events and Online Fundraising Capabilities.
Families of SMA has just completed a major improvement to fundraising tools. Click to learn more.
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| Jan 29 2010 |
Wall of Strength Nearing Quarter of a Million Dollar Goal
Click here to visit the Wall of Strength and read the messages of support and hope.
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| Jan 21 2010 |
Final Round Voting for the Chase Community Giving Campaign on Facebook for Spinal Muscular Atrophy Runs Through Friday.
Click here to see how to vote.
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| Jan 18 2010 |
New Profiles for the Twenty Five Voices of Spinal Muscular Atrophy from Families of SMA
Click here to see the profiles for The Potter Family and Jim Rusche, Ph.D.
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| Jan 11 2010 |
Opportunity to Participate in Survey for Parents of Children with Spinal Muscular Atrophy to Help in Diagnosis.
Click here for more information.
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