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The staff of Families of SMA are here to provide support and assistance to all patients and families affected by SMA. Please do not hesitate to contact any of us with any questions you may have about FSMA. President
Kenneth Hobby
kenneth@fsma.org
Research Director
Jill Jarecki, Ph.D.
jill@fsma.org
Family Support Director
Colleen McCarthy O'Toole
colleen@fsma.org Development Director
Nancy McInroy
nancy@fsma.org |  Nancy came to Families of SMA in January 2011 with 17 years of non-profit management, development and strategic planning experience with such national organizations as the American Liver Foundation, Leukemia & Lymphoma Society and ALSAC/St. Jude Children’s Research Hospital. Born and raised in Metro Detroit, Nancy completed a Bachelor of Science degree from Central Michigan University in 1993
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Sr. Development Manager - Eastern Region
Sarah Hunsicker
sarah@fsma.org | 
Prior to joining Families of SMA in November 2009, Sarah served as the Special Events Manager at Junior Achievement in Denver where, under her leadership, she executed an annual black-tie dinner, awards banquet, golf tournament and increased revenue to over $1 million through the JA Bowl-A-Thon program. A native of Crawfordsville, Indiana, Sarah holds a Bachelor of Science degree from the Krannert School of Management at Purdue University. |
Membership Manager
Karen O'Brien
karen@fsma.org
Family Support Administrator
Jessica Banas
jessica@fsma.org Family Support Administrator
Shannon O'Brien
shannon@fsma.org Sr. Development Coordinator - Central Region
Jennifer Chaput
jennifer@fsma.org |  Jennifer obtained her Bachelor of Science degree in Advertising Management and Psychology from the S.I. Newhouse School of Public Communications at Syracuse University. Jennifer has held internships with numerous advertising and media agencies and after returning to her hometown of Chicago, she served with Make-A-Wish Foundation of Illinois and United Way of the North Shore before coming to work at Families of SMA in December 2009.
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Development Coordinator - Western Region
Katie Paquette
katie@fsma.org |  Following the completion of a Bachelor of Arts degree from the University of Notre Dame, Katie served as a personal care assistant with L’Arche in Washington D.C. While there, she assisted with the organization’s development plan and the Annual Heart of L’Arche Breakfast and a walk-a-thon event on the National Mall. She began her career with Families of SMA in July 2010. Katie hails from Billings, Montana.
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Administrative Assistant
Ashley Ross
ashley@fsma.org |  Ashley completed her Bachelor of Arts degree in Communications from the University of Illinois at Chicago in May 2011. During her college career, Ashley held various leadership roles on campus and represented the state of Illinois for the National Association of College and University Residence Halls, the largest student-run organization in the world. Before serving in her current role, Ashley was a Development Intern for Families of SMA.
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Legislative Coordinator
Spencer Perlman
spencer@fsma.org
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