The diagnosis of Spinal Muscular Atrophy can be confusing, scary, frustrating, pretty much the whole gamut of emotions… but you are not alone. You are now part of Families of SMA, a network of families, researchers, clinicians and other professionals who are determined to make a difference.
Families of SMA is here for you at whatever level you need. We hope to provide you with information that will help you navigate through life with SMA. We are here to help connect you with other families and to provide resources to assist in the care of a family member with SMA. And we are here working together to fund the research that will lead us to a treatment and a cure for SMA. As caring parents and professionals, we can offer support and understanding when it is most needed.
The booklet below has details on the following Families of SMA programs:
1) Programs For Newly Diagnosed Families:
-Including our special Type I programs such as: Care Packages; Sheep Skin Blankets; and Radio Flyer Wagons.
2) Families of SMA Equipment Pool.
3) Medical Care.
-Including the “Ask the Expert” Service.
4) Daily Living.
5) Local Support.
6) How to Keep Up to Date.
7) The Annual SMA Conference:
-Including the FSMA Newly Diagnosed Conference Program.
Click the image below to download the booklet:
If you would like a hard copy mailed to you please email us at firstname.lastname@example.org or call (800) 886-1762.
Families of SMA will provide unbiased support for all those dealing with SMA.
Please don’t hesitate to Contact Us with any questions.