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Connecticut Chapter
President: Jonathan Goldsberry
PO Box 185744  Hamden,  CT  06518
P: (203) 288-1488  E: conn@fsma.org

Visit our online SMA Community by clicking here. First, login or create an account. Then, click the orange "Groups" tab at the top of the page.  Scroll through until you find "Connecticut Chapter" and click "Join Group" to start connecting with other families and friends in your area.

Chapter Events
May 5, 2012   1st Annual Cubby's Run for FSMA
December 1, 2011   The 2012 Annual Campaign
December 1, 2010   The 2011 Annual Campaign
October 24, 2010   The 8th Annual CT FSMA Walk-n-Roll
Local Chapter News
August 25, 2011   SMA Kid’s Cut-A-Thon
Please join us on Sunday, August 28, 2011 at Shine Salon located at 392 Main Street in Ridgefield, CT! Click the above link for more information.
May 25, 2011   Annual Picnic at Camp Harkness
Our Annual Picnic will be held on the beach at Camp Harkness State Park in Waterford, CT on Sunday, August 21st from noon to 6pm. Click the link above for more information.
March 10, 2011   Check out this great article about 7 year old Emma Goldsberry.
January 17, 2011   SMA Family Meeting with Dr. Acsadi
Join us tonight at 5:30pm at the CCMC Outpatient Facility in Farmington, CT for a family meeting with Dr. Acsadi. Pizza and drinks will be provided. Click the link above for more information.
August 5, 2010   Annual Picnic at Camp Harkness
Join us on Sunday, August 22 from Noon to 6pm for our annual picnic. The picnic will be held at Camp Harkness in Waterford, CT in pavilion two on the beach. Hamburgers and hot dogs will be provided, but please bring a dish to share and your own beverage. For more information or to RSVP, please contact Mary Ellen Barelle at mebarrelle@hotmail.com by August 15.
National News
February 7, 2012   Families of Spinal Muscular Atrophy Receives 250 Baby Einstein Discovery Kits for the Newly Diagnosed SMA Care Package Program.
Families of SMA is so incredibly grateful to receive a donation of 250 Baby Einstein Discovery Kits, which is one of the items now included in all Newly Diagnosed Care Packages, from Paula Lavigne and Chris Arnold in memory of their son, Wyatt Teagan Arnold.
 
January 30, 2012   Families of Spinal Muscular Atrophy Receives $25,000 Sponsorship from BAYADA Home Health Care for The 2012 Annual SMA Conference.
Families of Spinal Muscular Atrophy is excited to announce a significant sponsorship for The 2012 Annual SMA Conference.
 
January 26, 2012   New Winter Edition of the Families of Spinal Muscular Atrophy Directions Newsletter is Now Available Online.
The Winter 2011 edition of the family support and SMA community newsletter Directions is now available.
 

 

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