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Illinois Chapter
President: Janet Schoenborn
P.O. Box 684  Grayslake,  IL  60030
P: (847) 373-3762  E: illinois@fsma.org

Visit our online SMA Community by clicking here. First, login or create an account. Then, click the orange "Groups" tab at the top of the page.  Scroll through until you find "Illinois Chapter" and click "Join Group" to start connecting with other families and friends in your area.

For information about FSMA's national office in Elk Grove Village, IL, click here. (This is not the same location as the Illinois/Chicago Chapter.)

Chapter Events
June 30, 2012   Cure SMA Mama Bracelets
May 19, 2012   2nd Annual Tee Off with the Drive to Cure SMA in Honor of Ryan
December 1, 2011   The 2012 Annual Campaign
September 24, 2011   5th Annual Kyra's Idea... Angie's Hope Fundraiser for a Cure
September 11, 2011   15th Annual Chicago Half Marathon & 5K
July 30, 2011   First Annual SMA Walk-n-Roll to Cure Tala
June 12, 2011   Illinois Walk-n-Roll
May 21, 2011   Tee Off with the Drive to Cure SMA in Honor of Ryan
May 14, 2011   3rd Annual Bowl-A-Thon to Benefit Families of Spinal Muscular Atrophy in Memory of Zachary Brian Deutschle
December 1, 2010   The 2011 Annual Campaign
Local Chapter News
November 25, 2011   Five Below Fundraiser
Make Five Below your first stop on Black Friday! Throughout Black Friday weekend, if you bring in our flyer, Five Below will donate 10% of your sale back to Families of SMA!
October 3, 2011   Mama Bracelets and Families of SMA
Michael and Lindsay Casten of Naperville, Illinois have already raised hundreds of dollars for Families of SMA in honor of their beautiful daughter, Ella. For every purchase of a Cure SMA bracelet from www.mamabracelets.com, 30% of your purchase will come directly back to FSMA to help fund necessary research and family support programs! Click the link above to see the videos the Castens have created about Ella and their bracelets, and to find more information about their fundraising efforts.
National News
January 30, 2012   Families of Spinal Muscular Atrophy Receives $25,000 Sponsorship from BAYADA Home Health Care for The 2012 Annual SMA Conference.
Families of Spinal Muscular Atrophy is excited to announce a significant sponsorship for The 2012 Annual SMA Conference.
 
January 26, 2012   New Winter Edition of the Families of Spinal Muscular Atrophy Directions Newsletter is Now Available Online.
The Winter 2011 edition of the family support and SMA community newsletter Directions is now available.
 
January 25, 2012   Deadline for Early Registration for the Annual Spinal Muscular Atrophy Conference Approaches.
This head start early registration fee will be valid through February 1st, 2012, at 11:59pm Central Standard Time, when registration prices will increase.
 

 

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