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Kansas City Area Chapter
President: Kristal Wilson
P.O. Box 18485  Raytown,  MO  64133
P: (816) 529-1834  E: kcfsma@gmail.com

Visit our online SMA Community by clicking here. First, login or create an account. Then, click the orange "Groups" tab at the top of the page.  Scroll through until you find "Kansas City Chapter" and click "Join Group" to start connecting with other families and friends in your area.

Chapter Events
October 4, 2014   Kansas City Chapter 14th Annual Cure SMA Race-n-Roll
August 23, 2014   7th Annual Macy's Shop for a Cause
July 13, 2014   1st Annual Cove Charity Classic-Benefiting Families of SMA
June 12, 2014   The 2014 Annual SMA Conference
April 26, 2014   Gracie's 3rd Annual Steak Dinner
October 5, 2013   Kansas City Chapter 13th Annual Cure SMA Race-n-Roll
October 1, 2013   Cure SMA Quilt Drawing Opportunity
Local Chapter News
August 8, 2014   Fight, Cure and Glow for SMA
The 5k Glow run/walk in memory of Tucket Rutledge is on August 8th with a 9:00pm/8:30pm registration time starting in the Viburnum High School gym parking lot! Click the link for more information!
April 21, 2012   Gracie's 1st Annual Steak Dinner for SMA
Join the Kansas City Chapter for Gracie's 1st Annual Steak Dinner for SMA on Saturday, April 21st from 5:00-8:00pm at the Eugene Community Center in Eugene, MO. For more information, please click the link above!
August 17, 2011   Claire and Lauren Gibbs Light Candles for SMA Awareness
On August 13, 2011 families and SMA organizations around the country lit candles at sunset to remember those SMA Angels who have lost their battle with SMA and to honor those who are still here fighting everyday. Click here to see photos from Claire and Lauren’s candle lighting.
August 2, 2011   Z Club Car Show Sponsored by Bommarito Nissan
If you are in the St. Louis Area, stop by Bommarito Nissan this Sunday for the Z Club Car Show. All the proceeds from this event go to Families of SMA each year.
National News
July 25, 2014   Collaborative Study to Understand Patient Perspectives on Meaningful Clinical Trial Benefit to Continue in Cities Across The United States.
Families of SMA, the SMA Foundation, and several industry partners are co-funding this research project to better understand which clinical trial outcomes are particularly meaningful to SMA patients.
 
July 25, 2014   U.S. Senate Committee Encourages NIH to Continue SMA-Related Research Initiatives
 
July 22, 2014   Families of Spinal Muscular Atrophy Releases a New Care Series Booklet for Families about The Musculoskeletal System
 

 

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