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Kansas City Area Chapter
President: Kristal Wilson
P.O. Box 1214  Mission,  KS  66222
P: (816) 529-1834  E: kcfsma@gmail.com

Visit our online SMA Community by clicking here. First, login or create an account. Then, click the orange "Groups" tab at the top of the page.  Scroll through until you find "Kansas City Chapter" and click "Join Group" to start connecting with other families and friends in your area.

Chapter Events
June 12, 2014   The 2014 Annual SMA Conference
April 26, 2014   Gracie's 3rd Annual Steak Dinner
October 5, 2013   Kansas City Chapter 13th Annual Cure SMA Race-n-Roll
October 1, 2013   Cure SMA Quilt Drawing Opportunity
Local Chapter News
April 21, 2012   Gracie's 1st Annual Steak Dinner for SMA
Join the Kansas City Chapter for Gracie's 1st Annual Steak Dinner for SMA on Saturday, April 21st from 5:00-8:00pm at the Eugene Community Center in Eugene, MO. For more information, please click the link above!
August 17, 2011   Claire and Lauren Gibbs Light Candles for SMA Awareness
On August 13, 2011 families and SMA organizations around the country lit candles at sunset to remember those SMA Angels who have lost their battle with SMA and to honor those who are still here fighting everyday. Click here to see photos from Claire and Lauren’s candle lighting.
August 2, 2011   Z Club Car Show Sponsored by Bommarito Nissan
If you are in the St. Louis Area, stop by Bommarito Nissan this Sunday for the Z Club Car Show. All the proceeds from this event go to Families of SMA each year.
National News
April 24, 2014   Families of Spinal Muscular Atrophy is Currently Funding 24 Research Projects with Multiple Rounds of New Funding to be Announced in 2014.
Later in 2014 Requests for Proposals (RFPs) with new funding announcements will be made for over $1.5 Million.
 
April 23, 2014   Phase I Clinical Trial of Systemic SMN Gene Therapy For Spinal Muscular Atrophy To Begin at Nationwide Children’s Hospital in May.
 
April 23, 2014   New Edition of Compass Newsletter on Spinal Muscular Atrophy Clinical Care Research Grants.
 

 

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