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Greater New York Chapter
President: Debbie Cuevas
PO Box 322  Rockville Centre,  NY  11571
P: (516) 214-0348  E: greaterny@fsma.org

Greater New York Chapter Executive Board
Debbie Cuevas, Mariel McDonnell, Dolores Muoio, Michele Rubenstein, Alisa Rosenfeld, Michele Erwin and Genevieve Fitzpatrick.

Greater New York - Capital Region Satellite Chapter
David & Amy Cunniff - gnycapitalregion@fsma.org

Are you receiving our monthly chapter newsletter?  If not and you want to be added to the mailing list, please send an email to
Genevieve Fitzpatrick at gfitzpat26@aol.com

Visit our online SMA Community by clicking here. First, login or create an account. Then, click the orange "Groups" tab at the top of the page.  Scroll through until you find "Greater New York Chapter" and click "Join Group" to start connecting with other families and friends in your area.

Chapter Events
November 4, 2012   ING New York City Marathon 2012
August 3, 2012   Hiking the Colorado Rockies
July 9, 2012   FSMA Greater NY Chapter Golf Outing
April 28, 2012   Clink for a Cure Wine Tasting
March 18, 2012   2012 NYC Half Marathon
March 17, 2012   Crop for a Cure
March 4, 2012   NY Islanders SMA Awareness Day
Local Chapter News
March 24, 2012   2012 Rockville Centre St. Patrick's Day Parade
March with the Greater NY Chapter on Saturday, March 24th, 2012. For more details, please click the link above.
January 23, 2012   GNY - Capital Region Chapter Meeting
Monday, March 5, 2012 at 6:00 PM located at the Grace Fellowship Church in Watervliet, NY.
January 9, 2012   Greater NY Chapter Bereavment Group Meeting
Thursday, January 26, 2012 at 7:00 PM at the Van De Loo Home. Click above for more information.
October 21, 2011   A Thousand More Video Receives Multimedia Award
Mediastorm receives award for their video, A Thousand More, which showcases the Mayer Family.
September 19, 2011   Jumpin' Jeepers Fundraiser in Memory of Max Rubenstein
Please join us on Monday, October 10th, 2011 from 10:00am- 2:00pm at Jumpin' Jeepers in Mahopac, New York. For more information, please click the link above.
National News
May 15, 2012   Families of Spinal Muscular Atrophy Receives Additional Shipment of Wagons from Radio Flyer in Support of the SMA Care Package Program.
Radio Flyer, Inc. donates an additional 100 Pathfinder wagons to support the mission of Families of SMA.
 
May 10, 2012   Families of Spinal Muscular Atrophy Announces $700,000 Funding for Novel Drug Program at Newly Created California Institute for Biomedical Research
 
May 7, 2012   Families of Spinal Muscular Atrophy Announces Keynote Speakers and Research Q&A Participants at The 2012 Annual SMA Conference.
 

 

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