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Greater New York Chapter
President: Debbie Cuevas
PO Box 322  Rockville Centre,  NY  11571
P: (516) 214-0348  E: greaterny@fsma.org

Greater New York Chapter Executive Board
Debbie Cuevas, Mariel McDonnell, Dolores Muoio, Michele Rubenstein, Alisa Rosenfeld, Michele Erwin and Genevieve Fitzpatrick.

Greater New York - Capital Region Satellite Chapter
David & Amy Cunniff - gnycapitalregion@fsma.org

Are you receiving our monthly chapter newsletter?  If not and you want to be added to the mailing list, please send an email to
Genevieve Fitzpatrick at gfitzpat26@aol.com

Visit our online SMA Community by clicking here. First, login or create an account. Then, click the orange "Groups" tab at the top of the page.  Scroll through until you find "Greater New York Chapter" and click "Join Group" to start connecting with other families and friends in your area.

Chapter Events
August 3, 2012   Hiking the Colorado Rockies
March 18, 2012   2012 NYC Half Marathon
March 17, 2012   Crop for a Cure
March 4, 2012   NY Islanders SMA Awareness Day
December 1, 2011   The 2012 Annual Campaign
November 20, 2011   Zumbathon for SMA
September 17, 2011   7th Annual Greater New York Walk 'N Roll to Cure SMA
Local Chapter News
January 23, 2012   GNY - Capital Region Chapter Meeting
Monday, March 5, 2012 at 6:00 PM located at the Grace Fellowship Church in Watervliet, NY.
January 9, 2012   Greater NY Chapter Bereavment Group Meeting
Thursday, January 26, 2012 at 7:00 PM at the Van De Loo Home. Click above for more information.
October 21, 2011   A Thousand More Video Receives Multimedia Award
Mediastorm receives award for their video, A Thousand More, which showcases the Mayer Family.
September 19, 2011   Jumpin' Jeepers Fundraiser in Memory of Max Rubenstein
Please join us on Monday, October 10th, 2011 from 10:00am- 2:00pm at Jumpin' Jeepers in Mahopac, New York. For more information, please click the link above.
September 1, 2011   SMA Awareness Day with the NY Yankees
Sponsored by Quest Diagnostics
National News
February 22, 2012   Families of SMA Funded Researchers Publish Review Article on Role of SMN in Motor Axons
Drs. Claudia Fallini, Gary Bassell, and Wilfried Rossoll of Emory University publish paper in Brain Research.
 
February 17, 2012   American Medical Association Publishes Article on NINDS Clinical Trial Network NeuroNEXT with First Study on Spinal Muscular Atrophy.
Clinical Trial Network Removes Barriers Common to Studies of Neurological Diseases. First Study to be on SMA Biomarkers.
 
February 15, 2012   Families of Spinal Muscular Atrophy Releases The Breathing Basics Care Series Booklet Translated into Spanish.
Families of SMA has begun a new program of translating all of the SMA Care Series Booklets into Spanish editions. These booklets will be on hand at the FSMA National Office as well as available for download on the Families of SMA website at www.CureSMA.org.
 

 

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