HomeLoginSite MapContact Us
Click to submit search
  Donate Now!

SMA ResearchFSMA CommunitySMA Fundraising
Registry
Elist Sign Up
 


Connect with Families of SMA:

FacebookBanner

TwitterBanner

YouTubeBanner

Greater New York Chapter
President: Debbie Cuevas
PO Box 322  Rockville Centre,  NY  11571
P: (516) 214-0348  E: greaterny@fsma.org

Greater New York Chapter Executive Board
Debbie Cuevas, Mariel McDonnell, Dolores Muoio, Michele Rubenstein, Alisa Rosenfeld, Michele Erwin and Genevieve Fitzpatrick.

Greater New York - Capital Region Satellite Chapter
David & Amy Cunniff - gnycapitalregion@fsma.org

Are you receiving our monthly chapter newsletter?  If not and you want to be added to the mailing list, please send an email to
Genevieve Fitzpatrick at gfitzpat26@aol.com

Visit our online SMA Community by clicking here. First, login or create an account. Then, click the orange "Groups" tab at the top of the page.  Scroll through until you find "Greater New York Chapter" and click "Join Group" to start connecting with other families and friends in your area.

Chapter Events
August 3, 2012   Hiking the Colorado Rockies
March 18, 2012   2012 NYC Half Marathon
March 17, 2012   Crop for a Cure
March 4, 2012   NY Islanders SMA Awareness Day
December 1, 2011   The 2012 Annual Campaign
November 20, 2011   Zumbathon for SMA
September 17, 2011   7th Annual Greater New York Walk 'N Roll to Cure SMA
Local Chapter News
January 23, 2012   GNY - Capital Region Chapter Meeting
Monday, March 5, 2012 at 6:00 PM located at the Grace Fellowship Church in Watervliet, NY.
January 9, 2012   Greater NY Chapter Bereavment Group Meeting
Thursday, January 26, 2012 at 7:00 PM at the Van De Loo Home. Click above for more information.
October 21, 2011   A Thousand More Video Receives Multimedia Award
Mediastorm receives award for their video, A Thousand More, which showcases the Mayer Family.
September 19, 2011   Jumpin' Jeepers Fundraiser in Memory of Max Rubenstein
Please join us on Monday, October 10th, 2011 from 10:00am- 2:00pm at Jumpin' Jeepers in Mahopac, New York. For more information, please click the link above.
September 1, 2011   SMA Awareness Day with the NY Yankees
Sponsored by Quest Diagnostics
National News
January 30, 2012   Families of Spinal Muscular Atrophy Receives $25,000 Sponsorship from BAYADA Home Health Care for The 2012 Annual SMA Conference.
Families of Spinal Muscular Atrophy is excited to announce a significant sponsorship for The 2012 Annual SMA Conference.
 
January 26, 2012   New Winter Edition of the Families of Spinal Muscular Atrophy Directions Newsletter is Now Available Online.
The Winter 2011 edition of the family support and SMA community newsletter Directions is now available.
 
January 25, 2012   Deadline for Early Registration for the Annual Spinal Muscular Atrophy Conference Approaches.
This head start early registration fee will be valid through February 1st, 2012, at 11:59pm Central Standard Time, when registration prices will increase.
 

 

Site Map Contact Us Privacy Policy Legal Terms & Conditions