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New England Chapter
President: BJ Mirabile
P.O. Box 2902  Woburn,  MA  01888
P: (508) 476-2174  E: newengland@fsma.org

Visit our online SMA Community by clicking here. First, login or create an account. Then, click the orange "Groups" tab at the top of the page.  Scroll through until you find "New England Chapter" and click "Join Group" to start connecting with other families and friends in your area.

Chapter Events
August 10, 2014   Lowell Spinners Game & SMA Awareness Day
August 3, 2014   NH Fisher Cat Game & SMA Awareness Day
August 3, 2014   Sea Dogs Game & SMA Awareness Day
June 12, 2014   The 2014 Annual SMA Conference
June 2, 2014   2014 Rogo Cup SMA Golf Tournament
May 17, 2014   14th Annual New England Chapter Cure SMA Walk-n-Roll
April 19, 2014   2nd Annual Cure it with Comedy Show
April 19, 2014   Cure it with Comedy Raffle
April 13, 2014   New England Half Marathon Tour for SMA
October 27, 2013   2013 Halloween Hustle
Local Chapter News
March 24, 2014   SMA Study Opportunity From The Children's Hospital of Philadelphia
The Children's Hospital of Philadelphia, with generous support of Famillies of SMA, is conducting a study of how parents of children with Spinal Muscular Atrophy (SMA) make decisions about medical care for their children. If you are the parent or legal guardian of a child with SMA, we would like to invite you to participate in this study.
March 19, 2014   Local Author Writes Children’s Book on SMA
Luciante Salce, mother of Dominic, has written a children’s book, “The Adventures of Fizz the Fish.” Fizz, the Chinese fighting fish, has had quite the adventurous life...but there is nothing he loves more than to spend his days with the boy he loves best. Follow this courageous fish on his amazing journeys into the great big world as he learns that the most important experiences are shared with the ones you love. You can order your copy today, and all proceeds will benefit the New England C...

March 9, 2014   2nd Annual Hearts for Ezra Auction and Fundraiser
Join us for the 2nd Annual Hearts For Ezra Auction & Fundraiser. Music by Rick Charette! Magic by Dana Perkins! MC'd by the world famous Jon James of 92 Moose! Fun for all ages! Free Admission!
March 8, 2014   Miles For Matthew St. Paddy’s Day Benefit
Join us on Saturday, March 8, 7-11pm
February 11, 2014   Hearts for Ezra: How this baby boy’s death could change your life
Ezra Bessey was born May 30, 2012, and died a little more than eight months later. In that time, he was loved by his mother, Emily; father, Ethan; and sister, Daisy, now 4, and was largely content with the world. He smiled often and charmed people with his dimples, long eyelashes and big, bright brown eyes. Now, he is having a positive effect on those who never met him.
National News
April 16, 2014   Presenters Announced for The Family and Researcher Poster Session at The Annual Spinal Muscular Atrophy Conference.
Over thirty posters will be presented during the session.
 
April 15, 2014   Update on Families of Spinal Muscular Atrophy Funding to The California Institute of Biomedical Research
Developing new therapies for SMA is the driving force behind Families of SMA funding strategy. To achieve this goal, Families of SMA funds successful and innovative scientists like Dr. Peter Schultz.
 
April 10, 2014   Families of Spinal Muscular Atrophy Thanks our Sponsors for The 2014 Annual SMA Conference.
Families of SMA is pleased to announce that we currently have 18 sponsors registered for the upcoming 2014 Annual SMA Conference.
 

 

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