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OKI (Ohio, Kentucky & Indiana) Chapter
President: Beth Lockwood
P.O. Box 541012  Cincinnati,  OH  45254
P: (513) 753-8222  E: oki@fsma.org

Welcome to the OKI Chapter Webpage
Click here for Chapter Photos
President - Beth Lockwood. Vice President- Kristen Smith

Treasurer - (Open). Secretary - Nicole Haake
 



     

Take a look at this map to see all of the exciting progress and funding in the OKI Chapter region, covering Ohio, Kentucky and Indiana! Many doctors and multiple drug programs are currently receiving funding directly from Families of SMA throughout these states, thanks to your support. For more details on these studies, and all of the studies Families of SMA funds across the country, please visit www.fsma.org/research!

Visit our online SMA Community by clicking here. First, login or create an account. Then, click the orange "Groups" tab at the top of the page. Scroll through until you find "OKI Chapter" and click "Join Group" to start connecting with other families and friends in your area.

Chapter Events
September 7, 2014   Emmett's Run, Walk and Roll 5k
August 30, 2014   3rd Annual Indiana Walk n Roll
June 12, 2014   The 2014 Annual SMA Conference
June 7, 2014   FSMA Indianapolis Zoo event
May 17, 2014   FSMA Kentucky Walk-n-Roll
May 4, 2014   The Cincinnati Flying Pig Marathon
May 3, 2014   11th Annual OKI Chapter Walk-n-Roll
May 3, 2014   11th Annual OKI Chapter Walk-n-Roll Raffle
March 26, 2014   Return to Tiffany - Raffle
October 19, 2013   Pints for Half Pints
Local Chapter News
September 4, 2013   US Marshals Golf Outing
The US Marshals Golf Outing is coming up on Saturday, September 7th in Valley City, OH. Click the link above for more information!
July 26, 2013   Recruitment for F. Hoffmann-La-Roche Non-Interventional Study
FSMA is helping F. Hoffmann-La-Roche to recruit for an ongoing, non-interventional study being conducted in Kalamazoo, Michigan that will help to develop important biomarker tools to be used in future clinical trials. Click the link above for details.
July 19, 2013   Dine at Bob Evans on August 12 and 15% of sales go to FSMA
When you dine at a Bob Evans location on August 12, 2013 and present this flyer, 15% of sales goes to Families of Spinal Muscular Atrophy! Click the above link to access the flyer.
July 17, 2013   6th Annual Cody Munz Memorial Golf Scramble
The 6th Annual Cody Munz Memorial Golf Scramble will take place on August 24, 2013 in Wesfield Indiana. Click the link above for more information.
May 25, 2013   2013 SMA Honor Walk for Ta'Bria Neosha Collier
Join us on May 25th in Fort Wayne, IN for the 2013 SMA Honor Walk for Ta'Bria Neosha Collier. Click the link above for more information!
National News
April 24, 2014   Families of Spinal Muscular Atrophy is Currently Funding 24 Research Projects with Multiple Rounds of New Funding to be Announced in 2014.
Later in 2014 Requests for Proposals (RFPs) with new funding announcements will be made for over $1.5 Million.
 
April 23, 2014   Phase I Clinical Trial of Systemic SMN Gene Therapy For Spinal Muscular Atrophy To Begin at Nationwide Children’s Hospital in May.
 
April 23, 2014   New Edition of Compass Newsletter on Spinal Muscular Atrophy Clinical Care Research Grants.
 

 

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