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OKI (Ohio, Kentucky & Indiana) Chapter
President: Beth Lockwood
P.O. Box 541012  Cincinnati,  OH  45254
P: (513) 753-8222  E: oki@fsma.org

Welcome to the OKI Chapter Webpage
Click here for Chapter Photos
President - Beth Lockwood. Vice President- Kristen Smith

Treasurer - (Open). Secretary - Nicole Haake
 



     

Take a look at this map to see all of the exciting progress and funding in the OKI Chapter region, covering Ohio, Kentucky and Indiana! Many doctors and multiple drug programs are currently receiving funding directly from Families of SMA throughout these states, thanks to your support. For more details on these studies, and all of the studies Families of SMA funds across the country, please visit www.fsma.org/research!

Visit our online SMA Community by clicking here. First, login or create an account. Then, click the orange "Groups" tab at the top of the page. Scroll through until you find "OKI Chapter" and click "Join Group" to start connecting with other families and friends in your area.

Chapter Events
September 20, 2014   Birdies for Blake
September 7, 2014   Emmett's Run, Walk and Roll 5k
August 30, 2014   3rd Annual Indiana Walk n Roll
August 23, 2014   7th Annual Macy's Shop for a Cause
August 2, 2014   3rd Aubrey Grace Lyden Memorial Golf Scramble For FSMA
June 12, 2014   The 2014 Annual SMA Conference
June 7, 2014   FSMA Indianapolis Zoo event
May 17, 2014   FSMA Kentucky Walk-n-Roll
May 4, 2014   The Cincinnati Flying Pig Marathon
May 3, 2014   11th Annual OKI Chapter Walk-n-Roll
Local Chapter News
August 16, 2014   The Second Annual Deacon Alexander Memorial Car Show
The Second Annual Deacon Alexander Memorial Car Show, will be held August 16, 2014. All of the proceeds go to Families of SMA. The car show will be hosted at Walton First Baptist- 47 S Main St, Walton, KY 41094 in memory of Deacon Alexander Perry
September 4, 2013   US Marshals Golf Outing
The US Marshals Golf Outing is coming up on Saturday, September 7th in Valley City, OH. Click the link above for more information!
July 26, 2013   Recruitment for F. Hoffmann-La-Roche Non-Interventional Study
FSMA is helping F. Hoffmann-La-Roche to recruit for an ongoing, non-interventional study being conducted in Kalamazoo, Michigan that will help to develop important biomarker tools to be used in future clinical trials. Click the link above for details.
July 19, 2013   Dine at Bob Evans on August 12 and 15% of sales go to FSMA
When you dine at a Bob Evans location on August 12, 2013 and present this flyer, 15% of sales goes to Families of Spinal Muscular Atrophy! Click the above link to access the flyer.
July 17, 2013   6th Annual Cody Munz Memorial Golf Scramble
The 6th Annual Cody Munz Memorial Golf Scramble will take place on August 24, 2013 in Wesfield Indiana. Click the link above for more information.
National News
July 22, 2014   Families of Spinal Muscular Atrophy Releases a New Care Series Booklet for Families about The Musculoskeletal System
 
July 16, 2014   Families of SMA Releases a New Request for Proposals for Clinical Care Research Projects in Spinal Muscular Atrophy
 
July 11, 2014   National Institutes of Health Releases Three Grant Opportunities Related to Newborn Screening for Disease like Spinal Muscular Atrophy.
These grant opportunities respond to years of report language endorsed by Families of SMA in the annual congressional appropriations bills that funds the NIH.
 

 

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