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Pennsylvania Chapter
President: Karen McRory-Negrin
Box 4307  Philadelphia,  PA  19118
P: (866) 647-8113  E: pennsylvania@fsma.org

Visit our online SMA Community by clicking here. First, login or create an account. Then, click the orange "Groups" tab at the top of the page.  Scroll through until you find "Pennsylvania Chapter" and click "Join Group" to start connecting with other families and friends in your area.

Chapter Events
May 20, 2012   Families of SMA PA Chapter 9th Annual Cure SMA Walk-n-Roll
December 1, 2011   The 2012 Annual Campaign
October 8, 2011   8th Annual Lukie's Fall Festival
September 25, 2011   3rd Annual Zane's Run
Local Chapter News
February 2, 2012   New Hope's Got Talent Fundraiser
Join us on Sunday, March 4, 2012 from 4:00 - 7:00 PM at the New Hope Fire House. Come show off your talents and enjoy a performance by Devyn Rush from American Idol. For more information or to purchase your ticket today, click on the link above!
January 23, 2012   5th Annual JPL Benefit
Join the Schmidt and Lee family on Saturday, March 31, 2012 at 6:30 PM at the Saint Elizabeth Ann Seton Roman Catholic Church in Bear, DE. For more information, click on the link above.
January 19, 2012   PA Chapter Meeting
Sunday, February 12, 2012 from 2:00 - 4:00 pm at the Residence Inn in Montgomery, PA. Click the link above for more information.
September 27, 2011   Corn Hole Tournament to benefit Ford Sniezek
Please joins us for the Corn Hole Tournament to benefit Ford Sniezek on Saturday, October 8, 2011 at Moraine Sportsman's Club in Slippery Rock, PA. For more information, please click the link above.
September 16, 2011   Man vs. Machine
Please join us for the Fight for Ford fundraiser on Saturday, September 24, 2011 at Moraine State Park in Portersville, PA. For more information, please click the link above.
National News
February 7, 2012   Families of Spinal Muscular Atrophy Receives 250 Baby Einstein Discovery Kits for the Newly Diagnosed SMA Care Package Program.
Families of SMA is so incredibly grateful to receive a donation of 250 Baby Einstein Discovery Kits, which is one of the items now included in all Newly Diagnosed Care Packages, from Paula Lavigne and Chris Arnold in memory of their son, Wyatt Teagan Arnold.
 
January 30, 2012   Families of Spinal Muscular Atrophy Receives $25,000 Sponsorship from BAYADA Home Health Care for The 2012 Annual SMA Conference.
Families of Spinal Muscular Atrophy is excited to announce a significant sponsorship for The 2012 Annual SMA Conference.
 
January 26, 2012   New Winter Edition of the Families of Spinal Muscular Atrophy Directions Newsletter is Now Available Online.
The Winter 2011 edition of the family support and SMA community newsletter Directions is now available.
 

 

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