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Rocky Mountain Chapter
President: Marynell Larson
P.O. Box 1913  Arvada,  CO  80001-1913
P: (877) 591-4023  E: rockymt@fsma.org

Visit our online SMA Community by clicking here. First, login or create an account. Then, click the orange "Groups" tab at the top of the page. Scroll through until you find "Rocky Mountain Chapter" and click "Join Group" to start connecting with other families and friends in your area.

Chapter Events
September 6, 2014   Rocky Mountain Chapter Walk-n-Roll & Run
June 12, 2014   The 2014 Annual SMA Conference
May 19, 2014   11th Annual Charity Golf Tournament
March 13, 2014   2nd Annual Evening of Hope Beer and Cheese Pairing
October 1, 2013   Cure SMA Quilt Drawing Opportunity
September 7, 2013   Colorado Walk-n-Roll & Run Across America 5K
June 6, 2013   Evening of Hope Beer and Cheese Pairing
Local Chapter News
March 12, 2014   100K for SMA
Wednesday, March 12, 2014 in Keystone, CO
March 13, 2012   2012 Faces of Hope for SMA
Please click on the link above to watch the video created for the 2012 Evening of Hope Gala.
August 3, 2011   Barefoot Books Fundraiser
Joy Spellman, and independent sales ambassador for Barefoot Books, will be donating the entire commission she makes on each sale from now until December 15th. Click the link above for details about how to purchase these beautiful books and support Families of SMA!
January 17, 2011   Opportunity for the Medical Community to Learn about SMA
Click the link above for more information about a conference for medical professionals being held on February 4, 2011 at the Children's Hospital in Aurora, CO titled Recent Advances in Pediatric Neuromuscular Disease: Spotlight on Spinal Muscular Atrophy.
October 20, 2010   Important 2011 Evening of Hope Gala Announcement
National News
April 24, 2014   Families of Spinal Muscular Atrophy is Currently Funding 24 Research Projects with Multiple Rounds of New Funding to be Announced in 2014.
Later in 2014 Requests for Proposals (RFPs) with new funding announcements will be made for over $1.5 Million.
 
April 23, 2014   Phase I Clinical Trial of Systemic SMN Gene Therapy For Spinal Muscular Atrophy To Begin at Nationwide Children’s Hospital in May.
 
April 23, 2014   New Edition of Compass Newsletter on Spinal Muscular Atrophy Clinical Care Research Grants.
 

 

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