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Southern California Chapter
Rickk Montoya
12611 Cardinal Avenue  Garden Grove Areas,  CA  92843
P: (714) 390-6458  E: scalif@fsma.org

Visit our online SMA Community by clicking here. First, login or create an account. Then, click the orange "Groups" tab at the top of the page.  Scroll through until you find "Southern California Chapter" and click "Join Group" to start connecting with other families and friends in your area.

Chapter Events
August 17, 2015   DAWS - 800k for FSMA
October 12, 2014   2nd Annual Long Beach Marathon and Half Marathon
August 31, 2014   San Diego Padres SMA Awareness Day
August 23, 2014   7th Annual Macy's Shop for a Cause
June 12, 2014   The 2014 Annual SMA Conference
June 1, 2014   Team FSMA - Rock 'n' Roll Marathon and Half Marathon - San Diego
April 22, 2014   Love, Hope & Strength - Raising SMA awareness and honoring Angel Mia
November 3, 2013   5th Annual Inland Empire Walk-n-Roll
October 13, 2013   Inaugural Long Beach Marathon and Half Marathon
October 1, 2013   Cure SMA Quilt Drawing Opportunity
Local Chapter News
March 1, 2014   Chapter News – Southern California: Frank “The Tank” Golf Classic in honor of Frank Boschma
On Saturday, March 1, the Temecula Creek Inn will be hosting the Frank “The Tank” Golf Classic in honor of Frank Boschma, SMA Type II.
September 20, 2013   Stanford Announcement
May 2, 2013   Information About Local ISIS Clinical Trial Sites
Click the link above for more information about local trial sites at Stanford University and Lucile Packard Children’s Hospital at Stanford.
January 7, 2013   Zeke Lerner in Malibu Magazine
Zeke Lerner's picture was featured in the December issue of Malibu Magazine. Thank you to Zeke and the Lerner Family for sharing your story and helping to spread SMA Awareness! Click the link to see the picture!
October 28, 2012   Mustang Madness Car Show
Join us for The Orange County Mustang Club Mustang Madness Car Show on Sunday, October 28th, 2012 in Garden Grove, CA! A portion of the proceeds will benefit Families of SMA. Click the link above for the event flyer.
National News
July 22, 2014   Families of Spinal Muscular Atrophy Releases a New Care Series Booklet for Families about The Musculoskeletal System
 
July 16, 2014   Families of SMA Releases a New Request for Proposals for Clinical Care Research Projects in Spinal Muscular Atrophy
 
July 11, 2014   National Institutes of Health Releases Three Grant Opportunities Related to Newborn Screening for Disease like Spinal Muscular Atrophy.
These grant opportunities respond to years of report language endorsed by Families of SMA in the annual congressional appropriations bills that funds the NIH.
 

 

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