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Western New York Chapter
President: Bonnie Shiesley
P.O. Box 444  North Tonawanda,  NY  14120
P: (716) 622-0804  E: wny@fsma.org

Visit our online SMA Community by clicking here. First, login or create an account. Then, click the orange "Groups" tab at the top of the page.  Scroll through until you find "Western New York Chapter" and click "Join Group" to start connecting with other families and friends in your area.

Chapter Events
December 1, 2011   The 2012 Annual Campaign
August 6, 2011   8th Annual WNY SMArt Walk for a Cure
May 21, 2011   2nd Annual Charity Golf Tournament: Golf Fore FSMA
Local Chapter News
March 24, 2011   Check out this awesome video about Bailey Walter and Kale Shiesley.
September 20, 2010   9-year-old’s ‘Let Them Dance’ Campaign Seeks Funds to Find Cure for Spinal Muscular Atrophy.
Click the above link to read about two amazing nine-year-olds, Bailey Walter and Kale Shiesley, and their efforts to find a cure for SMA.
August 19, 2010   North Tonawanda Proclaims August 16 SMA Awareness Day
Thanks to the efforts of our Western New York Chapter, Mayor Robert Ortt proclaims August 16 Spinal Muscular Atrophy Day in North Tonawanda, NY!
National News
January 30, 2012   Families of Spinal Muscular Atrophy Receives $25,000 Sponsorship from BAYADA Home Health Care for The 2012 Annual SMA Conference.
Families of Spinal Muscular Atrophy is excited to announce a significant sponsorship for The 2012 Annual SMA Conference.
 
January 26, 2012   New Winter Edition of the Families of Spinal Muscular Atrophy Directions Newsletter is Now Available Online.
The Winter 2011 edition of the family support and SMA community newsletter Directions is now available.
 
January 25, 2012   Deadline for Early Registration for the Annual Spinal Muscular Atrophy Conference Approaches.
This head start early registration fee will be valid through February 1st, 2012, at 11:59pm Central Standard Time, when registration prices will increase.
 

 

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