HomeLoginSite MapContact Us
Click to submit search
  Donate Now!

TopCommunity

ResearchFSMA CommunityFundraising
Registry

 

Connect with Families of SMA:

FacebookBanner

TwitterBanner

YouTubeBanner
Photos
Wisconsin Chapter
Executive Committee: Kate Vogedes, Laurie King, Jenny Imhoff
P.O. Box 320516  Franklin,  WI  53132
P: (414) 324-0499  E: wisconsin@fsma.org

New Executive Committee:

Kate Vogedes, Laurie King, Jenny Imhoff, and Scott Sheppard. 

Welcome to the Wisconsin Chapter! Please contact us and introduce yourself if you are a Wisconsin family. 

Visit our online SMA Community by clicking here. First, login or create an account. Then, click the orange "Groups" tab at the top of the page.  Scroll through until you find "Wisconsin Chapter" and click "Join Group" to start connecting with other families and friends in your area.

Chapter Events
May 23, 2010   An Evening of Hope for Ari
Local Chapter News
August 25, 2010   Buy a T-shirt in Support of Families of Spinal Muscular Atrophy
Thanks to the Grindle Family of Flushing, MI, Karma Inc. Apparel is donating 10% of each sale to Families of SMA through the end of August. Please help support SMA research and check out these cool t-shirts!
August 23, 2010   Advocate for the SMA Treatment Acceleration Act
Tell Senators Herb Kohl and Russell Feingold that the SMA Treatment Acceleration Act is important to Wisconsin families.
July 22, 2010   SMA Education Day-August 14, 2010
LOCATION: University of Wisconsin School of Medicine and Public Health, Health Sciences Learning Center, 750 Highland Avenue, Room 1309, Madison, WI 53792 PRESENTATIONS: News and Updates from FSMA: Special Guests: Kenneth Hobby, President, Families of SMA and Colleen McCarthy O’Toole, Family Support Director, Families of SMA

Respiratory Therapy: Helpful Information for Parents and Caregivers

Handling Hospitalizations: What to Expect and Tips for Parents and Caregivers

Bracing for Fu...

July 15, 2010   2010 Round for an SMA Cure
Join us for a round of golf on Friday August 20, 2010 at the Silver Spring Country Club Island Golf Course located in Menomonee Falls, WI. Shotgun start at 9:30 AM. Click on the link above for more information or to register.
February 2, 2010   Hello Wisconsin!
I hope everyone is staying happy and healthy! Please feel free to contact us anytime if you have questions or just to chat. If you have any fundraisers coming up please let us know so we can help get the word out.
National News
August 26, 2010   Volunteers Across the Country Will Hold 50 Fundraising Events in the Next Two Months for Families of SMA to Raise Funds for Research, Support and Hope
Make a difference and join in. Your efforts will help bring us closer to a treatment and make a profound difference in your local community and to the families everywhere affected by SMA.
 
August 24, 2010   Project Cure SMA Clinical Network Publishes New Results in Muscle and Nerve
CMAP Assessed as a Potential Clinical Trial Endpoint During CARNI-VAL Trial. Please click here to read more about this study and how CMAP is relevant to SMA.
 
August 20, 2010   Spinal Muscular Atrophy Satellite Symposium at Society of Neuroscience
SMA groups to hold symposium at the Society for Neuroscience Meeting entitled "Nucleic Acids to the Rescue: Gene and Antisense Oligonucleotide Therapies for SMA".
 

 

Site Map  |  Contact Us  |  Privacy Policy  |  Legal Terms & Conditions
1-800-886-1762 | © 2010 Families of SMA