Since 1988, Families of SMA has hosted an annual conference so that families can hear about the latest research, gain an understanding of the genetics behind the disease, share the latest in disease management techniques and therapies, and network with other families and professionals.

For the last 13 years this conference has been held in conjunction with the annual International SMA Research Group Meeting (sponsored by FSMA). This gives the opportunity to families to actually meet the researchers who are looking for a treatement and cure for SMA, as well as with some of the most outstanding doctors and clinicians in the field of SMA.
(Researchers please click here.)

This is the largest conference in the world for those affected by SMA, and also for those involved in providing support and care for SMA patients.  There is no other program like this for those affected by SMA in the world.  The aspect of interactions between the researchers and families at one conference is extremely special.  The annual conference also provides our children an opportunity to make new friends and have a great time.

The 2009 FSMA Family and Professionals Conference will be held in Cincinnati, OH on June 18-21, 2009.