You must complete your conference registration with Families of SMA prior to reserving your room at the Marriott for the FSMA special room rate of $99 and free parking offer.
The Marriott Santa Clara will host this year’s conference. It is just south of San Francisco, only 4 Miles from San Jose airport and 30 minutes to San Francisco. The Santa Clara Marriott is a destination all its own. Complete with the palm trees and warm, California air, attendees will enjoy the beauty of California with one of the largest hotel outdoor heated pools in northern California and relax at one of two outdoor lounges. During your stay, venture across the street for some family fun at Great America Parkway. Explore The Intel Museum, the computer giant's visitor’s center where individual’s have a chance to see how computer chips are made. No visit to northern California would be complete without a visit to San Francisco, The City by the Bay. Ride a cable car, walk across the Golden Gate, explore Fisherman’s Wharf, or dine in world famous Chinatown.
Families of SMA has been hosting this conference for over 20 years. The weekend will be filled with networking opportunities with other families, workshops, a memorable kids program, a family and professional banquet, a family carnival, and opportunities to interact with families and get first hand updates from the researchers. Researchers Click Here.
We will be offering family attendees an amazing room rate of just $99 per night, along with free parking!
This year, we will be rolling out exciting new focused workshop tracks for newly diagnosed families, adults with SMA and workshop tracks specifically on each type of SMA. We are expecting a record attendance of over 1,000 attendees next year. As always, the Family and the Research conferences will be running alongside each other.
Your conference registration fee includes:
• 2 days of workshops
Thursday
• Afternoon program for newly diagnosed families
• PJ Movie night for kids and parents
• Ice Cream Social
• Child and Researcher Relay Race
Friday
• Continental Breakfast before Opening Session
• Full Banquet Dinner
Saturday
• Continental Breakfast before Opening Session
• Kids Carnival
Sunday
• Full Breakfast before General Session
Family Conference Registration Fees:
Adults (18 and older): $150
Child (17 and under): $50
Additional Banquet Tickets: $40
Please call (800) 886-1762 or email info@fsma.org if you have any questions about the conference.
Families of SMA will be offering an amazing support program for all newly diagnosed SMA families to attend the annual conference.
Newly Diagnosed Conference Program:
Through generous donations and sponsorships, Families of Spinal Muscular Atrophy will waiver registration fees for any families newly diagnosed since the previous conference in 2009. Note: this includes up to 4 immediate family members.
Our goal is to encourage as many newly diagnosed SMA families to attend and experience the benefits of this amazing conference.
The meeting gives families:
• The opportunity to gather critical care and daily living information early after diagnosis.
• To learn directly from experienced SMA physicians.
• To network with other families.
To apply for this program please email info@fsma.org or call (800) 886-1762 and mention “Newly Diagnosed Conference Program”.
Newly Diagnosed families should plan to arrive before noon on Thursday June 24th, if possible, as we will start a special general workshop program for newly diagnosed families on Thursday afternoon.
We also provide a limited number of financial need based scholarships to families. For more information e-mail info@fsma.org.
Since 1988, Families of SMA has hosted an annual conference so that families can hear about the latest research, gain an understanding of the genetics behind the disease, share the latest in disease management techniques and therapies, and network with other families and professionals.
For the last 14 years this conference has been held in conjunction with the annual International SMA Research Group Meeting (sponsored by FSMA). This gives families the opportunity to actually meet the researchers who are looking for a treatment and cure for SMA, as well as with some of the most outstanding doctors and clinicians in the field of SMA.
The conference provides many opportunities to interact and get first hand updates from the leading SMA researchers and clinicians from around the world who are working to develop a treatment and cure for SMA.
This is the largest conference in the world for those affected by SMA, and also for those involved in providing support and care for SMA patients. There is no other program like this for those affected by SMA in the world. The aspect of interactions between the researchers and families at one conference is extremely special. The annual conference also provides our children an opportunity to make new friends and have a great time.
The weekend will be filled with networking opportunities with other families, medical and care workshops, a memorable kids program, a family and professionals banquet, and a kids carnival.
Hotel accommodations:
Marriott - Santa Clara
2700 Mission College Blvd., Santa Clara, CA 95054
Sleeping Room Rates for Families: $99 for Single/Double/Triple/Quad
For reservations: You must complete Conference registration with Families of SMA prior to reserving your room at the Marriott.
Please register early, only a limited allotment of rooms are reserved with this conference Room Rate.
