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Conference

 2014 Annual SMA Conference

Registration for the 2014 Annual SMA Conference, held at the Gaylord National Resort in National Harbor, Maryland June 12th – June 15th,  is now closed.

You must complete your conference registration with Families of SMA prior to reserving your room at The Gaylord National for The Annual SMA Conference special room rate of $149 per night. This special room rate is available only to SMA conference attendees who have registered for the annual conference.

If you are a newly diagnosed family, please email familysupport@fsma.org.

Click here to see the timeline schedule for the 2014 Annual SMA Conference.


Families of SMA has been hosting this conference for 25 years. The weekend will be filled with networking opportunities with other families, workshops, a memorable kids program, a family fun fest and carnival, and opportunities to interact with families and get first hand updates from the researchers. We are looking forward to reuniting as a community at this conference and showing our support for others. As always, the Family and the Research conferences will be running alongside each other. This is the largest conference in the world for those affected by SMA, and also for those involved in providing support and care for SMA patients. There is no other program like it for those affected by SMA. The interactions between the researchers and families at one conference is extremely special. The annual conference also provides our children an opportunity to make new friends and have a great time. We are expecting another great attendance of over 1300 attendees.

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Registration for Researchers and the Annual Research Meeting will open in October.

Hotel Accommodations
The Gaylord National Resort and Convention Center in National Harbor, MD. To view more information about what the Gaylord National has to offer, click here.

Click here to see the National Harbor Directory Map.

Ground Transportation From the Airport: http://www.supershuttle.com/default.aspx?GC=FOSMA

Click here for information on Accessible Transportation in Washington, DC.

All requests for an accessible room at the 2014 Annual SMA Conference should be sent to Families of SMA. By reserving an accessible room through the hotel, it is not guaranteed that you will receive an accessible room, it is simply a request. All accessible rooms are held by Families of SMA and will be assigned based on the number of requests and needs of the individual. To request an accessible room please email familysupport@fsma.org or call 800-886-1762.
*NOTE: Any additional room requests or room details, other than requesting an accessible room, will need to be made through the Gaylord National.

Families of SMA Day on Capital Hill

Our legislative advocacy efforts will culminate with “The Families of SMA Day on Capitol Hill” on June 11, 2014, the day before the official start of The Annual SMA Conference.If you are interested in participating in the Day on Capitol Hill and other conference related advocacy activities, please sign up here by March 1.

With The Annual SMA Conference taking place in Washington, D.C. in 2014, the SMA community has a unique opportunity to further increase the awareness of SMA among lawmakers. Introducing Members of Congress to our community is the single most effective way that we can impact federal policies that will support efforts to develop therapies and clinical management protocols.

The Families of SMA Day on Capitol Hill will take place on Wednesday, June 11th, 2014, the day before the official start of The Annual SMA Conference. Participating families will begin the day with a breakfast on Capitol Hill, which will include a training session on how to be an effective advocate. Families then will move on to their scheduled meetings with their elected officials; Families of SMA will set up the meetings and provide any and all necessary talking points and “leave-behind” materials. We anticipate that this will be a highly enjoyable and educational experience for all who participate.

If you are interested in participating in the Day on Capitol Hill, please sign up here by March 1.

Registration Information
You must complete your conference registration with Families of SMA prior to reserving your room at the Gaylord National Resort to secure the FSMA conference room rate. This special room rate is available to SMA conference attendees from Monday June 9th through Wednesday June 18th!

Click here for registration information on the 2014 SMA Research Group Meeting. 

Newly Diagnosed Program
Families of SMA will again be offering an amazing support program for all newly diagnosed SMA families to attend the annual conference. Through generous donations and sponsorships, Families of Spinal Muscular Atrophy will waiver registration fees for any families newly diagnosed since the previous conference in 2013.

Scholarship Opportunity
Through generous donations, fundraisers and sponsorships, SMA families, who do not qualify for the newly diagnosed program, can apply for a chance to receive a registration scholarship to help the family be able to attend the amazing 2014 Annual SMA Conference.

Photo Policy
By registering for the Annual SMA Conference, you hereby understand that you may be photographed, videotaped, or digitally recorded, as may be your voice, and hereby waive any objection, condition, limit, or right you may have to the photographs or recordings.

Registration refunds for conference cancelations will only be given prior to Friday, June 6th.  There is a $25 non refundable processing fee that will be deducted from the refund.


 

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