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Presentations and Links from the 2008 Conference
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  • Presentation by Dr. Jill Jarecki on SMA Research Progress
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  • Family Banquet Video
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  • Presentation by Kenneth Hobby on Overall Goals and Progress
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  • Link to Positive Exposures
    With photos from the conference. Use the password: Boston. Can also order pictures from here.
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  • Fundraising Tools Presentation by Jillian Daugerdas
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  • Presentation by Spencer Perlman on Legislative Activities
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  • FSMA Legislative One Page Update
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  • Representative Markey Supports Conference and Joins as Cosponsor of SMA Treatment Acceleration Act.

     

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