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Families of Spinal Muscular Atrophy is excited to announce the patient care and family support workshops being offered at the Annual SMA Conference, held this June in Santa Clara, CA.
This year’s conference will be especially exciting as we are rolling out new focused workshop tracks for newly diagnosed families, adults with SMA, and specifically for each type of SMA. We are expecting a record attendance of over 1,000 attendees.
Our initial agenda includes over 40 specific workshops and sessions!
The Workshop, Activity, and General Session Topics for 2010 Include:
GENERAL SCIENCE & RESEARCH WORKSHOPS:
-Therapeutic Strategies for SMA
-Q & A Panels with SMA Researchers and Medical Professionals
RESPIRATORY & NUTRITION WORKSHOPS:
-Respiratory Care Choices for All
-Nutrition for All
PHYSICAL & MEDICAL MANAGEMENT WORKSHOPS:
-Physical Therapy, Occupational Therapy and Bracing
-Orthopedic Management Issues
-Exercise for SMA
-Pre-Hospital and Emergency Room Care
-Primary Care Topics
RECREATION & THERAPY WORKSHOPS:
-Benefits of Yoga for Kids
-Playtime for All –Adapting Toys for a SMA Child
-Aquatic Therapy
-Music Therapy
-Power Soccer Demo
EDUCATION & INDEPENDENCE WORKSHOPS:
-College Bound
-Accessible Housing
-Assistive Technology to Communicate Independently
-Opening the Doors to Adulthood
-Estate Planning
-Insurance Working for You
SELF HELP & WELLNESS WORKSHOPS:
-Healthy Living for the Caregiver
-Healing Process Part I
-Healing Process Part II
-Travel for SMA Families and Patients
-Adolescent Issues
OPEN DISCUSSION & SHARING WORKSHOPS:
-It’s a Wonderful Life!
-Knowledge is Power - Sharing Your Experience – Type I
-Knowledge is Power - Sharing Your Experience – Type II
-Knowledge is Power - Sharing Your Experience – Type III
-Knowledge is Power - Sharing Your Experience – Grandparents
-Knowledge is Power - Sharing Your Experience – Grieving
-Adults With SMA Roundtable
-Getting Involved -Legislative Initiatives
JUST FOR KIDS WORKSHOPS:
-Siblings Talk it Out
-SMA Kids Talk it Out
-SMA Kids Scene
This year we are also launching a special newly diagnosed program. This will include the following:
-Understanding Genetics
-Coming to Terms with a Diagnosis/Choices
-Respiratory and Nutrition Care
-Muscle/Orthopedics/ Function
-Welcome Dinner for Newly Diagnosed Families
Our 2010 family and researcher fun activities will include:
-Family Fun Carnival
-Family and Researchers Banquet
-Relay Race with Kids & Researchers
Fun Filled Children’s Program with Activities, Games, Toys and Movies
-Ice Cream Social
-PJ Party and Movie for Kids
-‘Create a Bear’ for Children
-Professional Portraits of SMA Children
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