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Continuing Medical Education Conference

Registration is now available, please click here

Registration Pricing:
Physicians - $150
Physical Therapists, Nurses, Nurse Practitioners, Physician Assistants, Occupational Therapists, Nutritionists, Respiratory Therapists, Speech Therapists, Allied Health, Residents & Fellows - $100

Jointly sponsored by:

University of Wisconsin School of Medicine and Public Health Office of Continuing Professional Development in Medicine and Public Health, Department of Pediatrics and Families of SMA.


To view the brochure for this Continuing Medical Education Conference, click here.

Course Overview
This activity will focus on the diagnosis of infants and children with neuromuscular weakness, clinical application of care standards to individuals with Spinal Muscular Atrophy, and discussion of pathophysiology and therapeutic strategies for intervention. Both regional and national expert faculty will provide didactic presentations and host panel discussions.

• Identify when to refer children with delayed motor milestones for further evaluation.
• Apply best practices to the coordinated care of individuals with Spinal Muscular Atrophy.
• Discuss and promote care coordination between the community and specialty care for children with Spinal Muscular Atrophy.

The purpose of this activity is to enable learners to identify their roles in effectively diagnosing, treating, and managing the care of patients with Spinal Muscular Atrophy.

Target Audience and Scope of Practice
This activity is intended for primary care providers including physicians, who identify and care for children affected by Spinal Muscular Atrophy, nurse practitioners, physician assistants and nurses, pediatric and adult specialists including neurologists, pulmonologists, rehabilitation medicine, orthopedic surgery, palliative care, physical and occupational therapists, speech and language pathologists, nutritionists, social workers, respiratory therapists and trainees in the above disciplines.

CME Agenda
7:00 am - 8:00 am    Registration/Breakfast        
8:00 am                   Welcome and Overview – Mary Schroth, MD            
8:15 am                   Evaluation of the Floppy Infant and Toddler with Delayed Milestones – Garey Noritz, MD 
9:00 am                   Overview of SMA – John Kissel, MD  
9:30 am                   Break
9:45 am                   SMN Biology and Therapeutic Strategies– Charlotte Sumner, MD
10:15 am                 Medical Home Models for the Child and Family with SMA – Garey Noritz, MD and Rob Graham, MD
10:45 am                 Navigating Choices for Care – Vanessa Battista, RN, MS, CPNP, CCRC
11:15 am                 Top 10 Hot Topics in SMA Nutrition – Rebecca Hurst, MS, RD, CD and Erin Seffrood, MS, RD, CSP
12:30 pm                 Lunch and Poster Session with Researchers

Breakout Sessions:  
      A. Cardiopulmonary Care – Richard Shell, MD  and Richard Kravitz, MD
      B. Orthopedic Care  – Brian Snyder, MD 
      C. Breathing – Mary Schroth, MD
      D. Rehab Therapy Recommendations –  (Mobility/Flexibilty by SMA type) Kristin Krosschell, PT, MA, PCS;  Robert Rinaldi, MD; and Leslie Nelson, PT, MPT, OCS

2:00 pm ABCD
3:30 pm Break
3:45 pm ABCD
5:15 pm  Meeting adjourned

CME Scholarships
Thanks to generous funding from Sweet Baby Zane, The Miller McNeil Woodruff Foundation and the Pennington Foundation, medical providers across the country can apply for a scholarship to attend the Families of SMA 2014 Continuing Medical Education (CME) Conference in National Harbor, MD at the Gaylord National Resort on Friday, June 13th.

The scholarships will cover registration fees, travel costs and lodging for two night’s hotel so medical professionals can attend this one day event. All guidelines and reimbursement information will be sent to scholarship recipients upon receiving notification of their scholarships.

Conference Planning Committee:

Mary K. Schroth, MD, Chair
Barbara Anderson, MS
Vanessa Battista, RN, MS, CPNP, CCRC
Jessica Clark
Robert Graham, MD
Amy Kephart, MPH
John Kissel, MD
Richard Kravitz, MD
Colleen McCarthy, O’Toole
Garey Noritz, MD
Richard Shell, MD

Families of SMA Medical Advisory Council
Mary K. Schroth, MD
Pediatric Pulmonology
Families of SMA, Medical Advisory Council Chair,
American Family Children’s Hospital,
University of Wisconsin School of Medicine and Public Health

Garey Noritz, MD
Internal Medicine Nationwide Children’s Hospital,
The Ohio State University

Rob Graham, MD
Critical Care Medicine
Children’s Hospital Boston,
Harvard Medical School

Susan Apkon, MD
Pediatric Rehabilitation Medicine
Seattle Children’s,
University of Washington School of Medicine

Brian Snyder, MD, PhD
Pediatric Orthopedic Surgery
Children’s Hospital Boston,
Harvard Medical School

Richard Shell, MD
Pediatric Pulmonology
Nationwide Children’s Hospital,
The Ohio State University

Vanessa Battista, RN, MS, CPNP, CCRC
Pediatric Nursing
Children’s Hospital of Philadelphia

John Grayhack, MD
Pediatric Orthopedic Surgery
Northwestern University
Feinberg School of Medicine

Kristin J. Krosschell, PT, DPT, MA, PCS
Physical Therapy and Human Movement Sciences
Northwestern University Feinberg School of Medicine

Richard Kravitz, MD
Pediatric Pulmonology
Duke University Medical Center,
Duke University School of Medicine

Karen Patterson, MS, PT, PCS
Physical Therapy
University of Wisconsin School of Medicine and Public Health

Tom Crawford, MD
Pediatric Neurology
Johns Hopkins Hospital

Erin Seffrood, MS, RD, CSP, CD
Pediatric Dietitian
American Family Children's Hospital

Richard Finkel, MD
Pediatric Neurology
Nemours Children's Hospital, Orlando, FL 

John Kissel, MD
The Ohio State University,
Wexner Medical Center

Kenneth Silver, MD
Pediatric Neurology
University of Chicago Comer Children’s Hospital

Albert Freedman, PhD
Child & Adolescent Psychologist
Independent Practice
West Chester, Pennsylvania

About Spinal Muscular Atrophy (SMA)
Spinal Muscular Atrophy (SMA), the number one genetic killer of children under the age of two, is an often fatal disease that destroys the nerves controlling voluntary muscle movement, which affects crawling, walking, head and neck control, and even swallowing.
• SMA is one of the most prevalent genetic disorders
• One in every 6,000 babies is born with SMA
• SMA can strike anyone of any age, race or gender
• One in every 40 people carries the gene that causes SMA. The child of two carriers has a one in four chance of developing SMA
• 8 million Americans are carriers

About Families of SMA
Families of Spinal Muscular Atrophy (FSMA) is dedicated to creating a treatment and cure by: funding and advancing a comprehensive research program; supporting SMA families through networking, information and services; improving care for all SMA patients; educating health professionals and the public about SMA; Enlisting government support for SMA; and embracing all touched by SMA in a caring community. FSMA’s vision is a world where Spinal Muscular Atrophy is treatable and curable.

Families of SMA funds and directs the leading SMA research programs.  Successful results and progress from basic research to drug discovery programs to clinical trials provide real hope for families and patients. Families of SMA is a non-profit, 501(c)3 tax exempt organization with 31 Chapters throughout the United States and over 85,000 members and supporters.

Along with funding and directing leading SMA research, Families of SMA provides core resources and assistance that help families navigate life with SMA. Families of SMA gives a stable, unbiased platform for families to live active, engaged and hopeful lives. These resources include: Information provided to all newly diagnosed families to understand and manage the disease; Care packages of toys that have been recommended for SMA children; A medical equipment pool available to families at no cost; The Annual SMA Conference; and the nation’s largest gathering of those affected by SMA and leading researchers from around the world.

Additional information about FSMA can be found at www.curesma.org.

The University of Wisconsin provides equal opportunities in employment and programming, including Title IX requirements.
The  University of Wisconsin School of Medicine and Public Health fully complies with the legal requirements of the ADA and the rules and regulations thereof.  If any participant in this educational activity is in need of accommodations, please contact Barbara Anderson at 608/263-8542.

Statement of Need
SMA is a rare life threatening disorder that affects 1 in 6000 live births. Children with SMA are not diagnosed or referred for diagnosis in a timely way due to a lack of primary care provider lack of knowledge related to current best practices for diagnosis and management of these patients.

Elements of Competence
This CME activity has been designed to change learner knowledge and performance and focuses on the American Board of Medical Specialties areas of patient care and procedural skills, medical knowledge, practice-based learning and improvement, interpersonal and communication skills, professionalism and systems-based practice.

Accreditation Statement
This activity has been planned and implemented in accordance with the Essential Areas and policies of the Accreditation Council for Continuing Medical Education through the joint sponsorship of the University of Wisconsin School of Medicine and Public Health and the Families of SMA. The University of Wisconsin School of Medicine and Public Health is accredited by the ACCME to provide continuing medical education for physicians.

Credit Designation Statement
The University of Wisconsin School of Medicine and Public Health designates this live activity for a maximum of 7 AMA PRA Category 1 Credit(s)TM. Physicians should claim only the credit commensurate with the extent of their participation in the activity.

American Academy of Family Physicians Continuing Education Statement
This Live activity, Interdisciplinary Perspectives on Spinal Muscular Atrophy: Defining Your Role, with a beginning date of 06/13/2014, has been reviewed and is acceptable for up to  7.00 Prescribed credit(s) by the American Academy of Family Physicians. Physicians should claim only the credit commensurate with the extent of their participation in the activity.

Nursing Continuing Education
This activity has been submitted to WNA CEAP for approval to award contact hours. Wisconsin Nurses Association is accredited as an approver of continuing nursing education by the American Nurses Credentialing Center’s Commission on Accreditation.

Continuing Education Units
The University of Wisconsin - Madison, as a member of the University Continuing Education Association (UCEA), authorizes this program for 0.7continuing education units (CEUs) or 7 hours.

Policy on Faculty and Sponsor Disclosure
It is the policy of the University of Wisconsin School of Medicine and Public Health that the faculty, authors, planners and other persons who may influence the content of this CME activity disclose all relevant financial relationships with commercial interests in order to allow CME staff to identify and resolve any potential conflicts of interest. Faculty must also disclose any planned discussion of unlabeled/unapproved uses of drugs or devices during their presentation(s). Detailed disclosures will be made in the activity handout materials.


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