Families of Spinal Muscular Atrophy

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Articles on Parenting

Home > FSMA Community > Daily Life > Parenting > Articles and Links


	Books About Parenting a Child with SMA / Special Needs

	Celebrating Holland

	How do I explain SMA to my young child?

	Idea to Help Push SMA Awareness in Medical Community

	Independent Living Skills Needed

	Links to Parenting Special Needs Sites

	Open Letters to Parents of Newly Diagnosed Children

	Potty Training

	Talking about SMA and FSMA to Kids

Articles by Al Freedman, Ph.D.


	Giving Thanks

	Happy Holidays?

	Keeping Hope Alive

	My Son Jack

	On Listening to What the Children Say

	Paying It Forward

	Reaching Out to Family and Friends

	The Challenge of Coping with Spinal Muscular Atrophy

	The Passing of a Hero

	Welcome to Our Home

	What It Means To Care

Adapting Toys for Children with SMA


	Adapting Doodle Doug By Shannon Kuester

	Adapting Toys for Children With SMA By Shannon Kuester

	How to Assemble a 1/8” plug for Toy Adaptations By Shannon Kuester

	Samantha's Swing and Toy Ideas Toy Ideas for a Type I Child By Mary Jane Utzat

	Simple Toy Adaptations From the National Lekotek Center

	Tools for Adapting Toys Recommendations from Shannon Kuester

	Toys! Toys! Toys! (and more) Advice Finding Toys Appropriate for SMA Children