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Guidelines for SMA Community Connections To provide a setting for families and friends, who are somehow affected by Spinal Muscular Atrophy, to connect with each other To allow members of this website to share valuable resources that could help others To support families and friends who have become newly diagnosed with SMA To build friendships and provide support throughout this social networking site Families of SMA offers friendship and support to all affected persons, their families and friends. We must respect each other's feelings and beliefs, even if we disagree. Messages which may cause pain and dissension, or those criticizing any person or organization, will be removed. Policies for SMA Community Connections SMA Connections will not allow any vulgar or distasteful language, pictures, videos, etc. and has the right to delete this, if it is seen SMA Connections is run by the non-profit organization Families of Spinal Muscular Atrophy, any other organizations trying to promote their fundraisers on this site, have the chance of being deleted Please do not promote, advertise or discuss the fundraising events of other organizations - such messages will be removed. If you want to give or receive information about fundraising events or publicity, contact FSMA Director of Fundraising - see FSMA Fundraising for contact info - to have it posted in an appropriate area of the site. FSMA reserves the right to remove any postings, at our discretion. No one at FSMA wishes to pre-screen or filter your communications. We do not and can not review all messages posted in the Forums. Members expect each other to behave with consideration and mutual respect. If we learn of communications that may be unlawful or harmful to others, or that impinge upon the rights of other visitors, we will take appropriate action. We may delete any communication that we deem to be inappropriate, and may send you a warning and/or terminate your membership immediately By posting on SMA Community Connections, you agree to abide by these rules. The following House Rules are for participation in our SMA Community Connections. By posting to the site, you agree to abide by the following rules. Registration and Privacy
-To post messages, you must register your real name and a valid email address. However, you may use a handle or nickname as your user name to protect your privacy, and hide your user profile from view of other users
-Please do not include your email address in your posting. Commercial email harvesters will collect it and send you spam. Your email address is also not displayed in your profile. No posting of phone numbers or home addresses or any such personal information Appropriate Postings Content
-Families of SMA offer friendship and support to all affected persons, their families and friends. We must respect each other's feelings and beliefs, even if we disagree. Messages which may cause pain and dissension, or those criticizing any person or organization, will be removed
-Please do not promote, advertise or discuss the fundraising events of other organizations - such messages will be removed. If you want to give or receive information about fundraising events or publicity, contact FSMA Director of Fundraising - see FSMA Fundraising for contact info - to have it posted in an appropriate area of the site Appropriate Postings Location and Style
-Posts are to be made in the relevant forum. Members are asked to read the forum descriptions before posting. Please use an appropriate, descriptive title when posting a new topic. Examples of unhelpful titles include; "Help me!","I'm new!" etc. Examples of good titles include "Wheelchair repairs", "IEP info needed", etc.
-Good manners online means that you don't post the same note more than once. The online word for posting many times on one topic is "spamming." We don't allow spamming. Inappropriate Postings
-Remember that if you see someone violating these House Rules that does not mean that you can violate the House Rules
-FSMA reserves the right to remove any postings, at our discretion. No one at FSMA wishes to pre-screen or filter your communications. We do not and can not review all messages posted in the Forums. Members expect each other to behave with consideration and mutual respect. If we learn of communications that may be unlawful or harmful to others, or that impinge upon the rights of other visitors, we will take appropriate action. We may delete any communication that we deem to be inappropriate, and may send you a warning and/or terminate your forum membership immediately. Moving Messages and Discussions
-Moderators will frequently split discussions to accommodate new topics. This will result in some good postings being moved to other areas where they are more appropriate, accessible or helpful.
-Some discussions and postings may be routinely deleted if there is no activity after a while, or if the postings have limited time relevance. This is known as pruning and does not imply any postings were inappropriate. It allows us to keep the most useful information more prominently displayed Legal Notices
-We don't allow obnoxious, obscene, racist, or sexually-explicit language. We will remove posts that defame or insult any person or organization, as well as those that are abusive or hateful. Any harassing posts that might be construed as stalking will be deleted and made available to law enforcement. We also reserve the right to move or remove posts that are inappropriate or off subject. We reserve the right to do all of this without warning.
-No commercial usage, solicitations or advertisements are allowed, except in any area specifically and obviously set aside for advertisements.
-You may not suggest, condone or encourage or link to illegal activity.
-You must have copyright ownership of all material that you post on our forum. No articles, poems, song lyrics, art or graphics may be posted without the written consent of the copyright holder.
-If you post a photo of a minor, you must be the parent or guardian or have the permission of the parent or guardian to post the photo
-Opinions, advice and all other information expressed on this site represent the individual's own views and not necessarily those of FSMA
-You participate at your own risk on this social network site. You take responsibility for postings under your identification and use the information provided here at your own risk. FSMA takes no responsibility for the content, information or opinions posted here.
-You agree that you will indemnify and hold harmless FSMA and its board from any and all liability resulting from publication, distribution or redistribution related to the posted material or the use of the material by any person Sanctions
-FSMA operates a three strike policy. Users will be warned a maximum of three times for any and all offences in a three month period. If the need arises for a fourth warning a temporary ban will be put in place
-Users who feel they have been unfairly warned are welcome to contact the relevant team leader, e.g. if warned by a moderator you should contact the Moderator Team leader.
-Permanent bans will be a last resort. By posting on SMA Community Connections, you agree to abide by these rules. Thank you for your support.
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