Welcome to the Families of SMA Legislative Homepage!
The policies that Congress debates and the laws it passes affect nearly all aspects of the everyday lives of families touched by SMA. Some of Congress’s responsibilities include: providing funding for vital biomedical research; setting policies related to newborn screening, healthcare coverage, and Medicaid eligibility requirements; and making determinations related to special education funding and policies.
It is important that the SMA community stay informed and involved to make their voice heard on these and other legislative issues of importance. In order to help you with this process, we have provided for you easy access to the Families of SMA legislative agenda, tips for contacting your Members of Congress, and news on the latest action in Washington, D.C.
We hope that you find the information contained within this website to be useful. Additionally, please visit the “Publications” portion of the Families of SMA website if you wish to read legislative-themed articles in “Directions.”