| Legislative Agenda and Mission |
Families of SMA is focused on three primary legislative goals: - Securing passage of The SMA Treatment Acceleration Act
- Implementing a national program to screen every newborn for SMA
- Increasing federal funding for SMA research
Direct communication with the leadership of Congress and Federal Agencies by the members and supporters of Families of SMA is critically important to achieving each of these goals. The above links provide access to information on the Families of SMA legislative priorities and the tools necessary to contact policy makers. Families of SMA is continuously working to increase its presence within the U.S. House of Representatives and the U.S. Senate as well as the various health related agencies within the federal government, including the National Institutes of Health (NIH), the Health Resources and Services Administration (HRSA), the Centers for Disease Control and Prevention (CDC), and the Centers for Medicare and Medicaid Services (CMS). Your support is critical to these efforts.
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