The Secretary of Health and Human Services's Advisory Committee on Heritable Disorders and Genetic Diseases in Newborns and Children is the leading federal entity responsible for setting national policy on newborn screening.  Families of SMA has regularly engaged the Advisory Committee, its Chairman, and members to advocate for inclusion of SMA in the uniform federal newborn screening panel. 

The links above will connect you to testimony provided to the Advisory Committee by Families of SMA representatives as well as a letter to the Chairman of the Advisory Committee from several leading researchers calling for SMA to be included in the uniform screening panel.