|
|
|
| 2008 |
| August 4, 2008 |
Congress Creates New Programs to Provide a High Quality Higher Education to Students with Disabilities
The Higher Education Opportunity Act establishes a National Technical Assistance Center to provide information on best practices to college students with disabilities and creates demonstration projects to support postsecondary faculty, staff, and administrators in educating students with disabilities. Please click on the link above to learn more.
|
|
|
| July 1, 2008 |
An Update on the Results of Your Grassroots Efforts!
Thanks to our grassroots efforts, 60 Members of the House of Representatives and 18 Senators have now signed on to the SMA Treatment Acceleration Act. Also included here: information on easy steps for you to take to join in the campaign.
|
|
|
| June 27, 2008 |
Sentate Appropriations Committee Releases Fiscal Year 2009 Appropriations Bill.
This contains report language under the NIH relative to SMA.
|
|
|
| June 27, 2008 |
House Appropriations Committee Releases Fiscal Year 2009 Labor, Health & Human Services, and Education Appropriations Bill.
This contains report language under the NIH relative to SMA.
|
|
|
| June 23, 2008 |
SMA Community Formally Requests SMA Screening for All Newborns
Under the leadership of Families of SMA, the SMA community submitted a Nomination Form to the federal Advisory Committee responsible for determining the disorders for which all newborns in the United States are screened. The formal Nomination Form is attached
|
|
|
| June 23, 2008 |
SMA Treatment Acceleration Act Now Has 56 Cosponsors!
The SMA Treatment Acceleration Act has 56 cosponsors in the House of Representatives and 15 cosponsors in the Senate. Attached is a link to the Library of Congress website page that lists the cosponsors.
|
|
|
| June 23, 2008 |
Power Point Presentation on Contacting Congress
The Power Point Presentation from the 2008 Families of SMA Annual Conference in Boston on Contacting Congress is now available
|
|
|
| June 16, 2008 |
Washington Post Urges Congress to Pass Disability Legislation
Bill would create tax-exempt "savings account" for people with disabilities
|
|
|
| May 6, 2008 |
GINA Passes Congress
Health Insurers and Employers Prohibited from Discriminating Based Upon One's Genetic Profile
|
|
|
| January 1, 2008 |
Nationwide Grassroots CALL TO ACTION
|
|
|
|
|
|
