|
This is the Medical Issues section of the FSMA web site with timely information and resources on these important topics: - Genetics
- Respiratory Care
- Physical Therapy and Exercises
- Occupational Therapy and Exercises
- Orthopedics
- Nutrition
- Palliative Care
FSMA Medical Advisory Board: FSMA is pleased to have a Medical Advisory Board, which includes national and international experts in SMA, who help to guide the organization and answer general questions about medical care for SMA patients. See the "Ask the Expert" section, below. Educational Brochures and Links: FSMA offers free brochures, that you can open and download, with current information on specific topics, such as Genetics and Diagnosis, along with links to additional resources. Ask the SMA Expert: Would you like to direct a general question about SMA to our Medical Advisory Board? If yes, you can "Ask the Expert" via email. We will attempt to provide an answer as quickly as possible. Here's what to do: - Send your question to expert@fsma.org
- Keep in mind that Families of SMA does not, as an organization, support or endorse any particular treatment or therapy. All medical information presented should be discussed with a qualified physician.
Additional Resources: "Gearing Up For Your Hospital Stay"--a helpful article. Click here for the article.
A Family Guide to the Consensus Statement for Standard of Care in SMA--helpful recommendations for care of children with SMA. Click here for Standard of Care documents.
|