Families of Spinal Muscular Atrophy

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Nutrition

This section focuses on Nutritional care issues for SMA patients.

Click here for a series of concise documents by Gail Wiebke, M.S., R.D., Kathryn J. Swoboda, M.D., and Mary Schroth, M.D. that contain essential and up-to-date nutritional guidelines for SMA:

Additional Sources of Information


	Dr. Swoboda's Nutrition Page

	Presentation on Nutritional Guidelines for SMA patients A powerpoint from the June 2004 FSMA Family and Professional Conference by Dr Kathy Swoboda.

	Gastrostomies An information sheet from The Jennifer Trust.

	Potty Training An article by an anonymous mom.

	Jaw Tightness Issues - our story An article by Tracie Donati.

	Swallowing or Chewing Problems A quick article from Directions.

	What is the Amino Acid Diet? By SMA parent Mary Bodzo, a presentation at the 2005 FSMA conference.

	Diet and Nutrition for SMA By Gail Wibke, M.S., R.D. - chat transcript from September 2006.

	Guidelines for Gastrostomy Tube Feeding for Infants with SMA type I By Dr. Kathy Swoboda.