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A Young Man's Voice (Experience with a Tracheotomy)
Reprinted in part with permission from the Muscular Dystrophy Family Organization |
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Aaron's Tracheostomy Page
Extensive and detailed information and diagrams about pediatric trachs and their care |
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Care Guidelines for SMA Children with Acute Respiratory Illness
By Dr. Mary Schroth and Dr. Kathy Swoboda. |
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Chest Physiotherapy in SMA
From the Jennifer Trust for SMA. |
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Cough Assist Machine
Health fact sheet from the University of Wisconsin. |
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Dr. Swoboda's Respiratory Page |
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Draft of letter of Medical Necessity for Cough Assist (In-Exsufflator)
From Dr. Bach (www.doctorbach.com). |
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Every Breath You Take Part I
June Price With editorial assistance from Edward Anthony Oppenheimer, M.D. Pulmonary & Critical Care Medicine, Los Angeles, CA |
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Every Breath You Take Part II
Pneumonia Noninvasive Ventilation & Oxygen Availability Edward Anthony Oppenheimer, M.D. With an introduction by June Price |
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Hope and Life after Traching and Venting
A letter from Karen Ruhle. |
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In-Exsufflators 101
A Practical Guide to the Use of an In-Exsufflator (Cough Assist) by Tom Tomko. |
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International Ventilator Users Network
IVUN is a worldwide network of ventilator users and health professionals experienced in and committed to home care and long term mechanical ventilation. |
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IPV - A Well Kept Secret
An article by Carol Anderson. |
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Masks: Non-Invasive Interfaces
By Diana Guth, RRT, owner of Home Respiratory Care, Lost Angeles, CA. |
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My Way IS the Highway - Powering Your Medical Equipment on the Road
An article by Dana Craven, mom of SMA type 1. |
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Neurological Disease Raises Risk of Complications from Flu
Study Supports Annual Flu Vaccination for Children with Neurological Conditions Information provided by the Children's Hospital of Philadelphia - www.chop.edu |
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Pediatric Noninvasive Ventilation / Mask and Ventilation Sources |
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Pediatric Trach Care
From www.tracheostomy.com |
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RECOMMENDATIONS FOR POST-OPERATIVE CARE OF CHILDREN WITH NEUROMUSCULAR DISEASE FOLLOWING SURGERY
Prepared by Mary Schroth, MD, Pediatric Pulmonary, Univ of Wisconsin |
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Respiratory Care of SMA and Choices
By Dr. Mary Schroth |
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Respiratory Issues in SMA
Transcript of chat with Dr. Mary Schroth. |
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Supporting Article on the Benefits of In-Exsufflator |
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The CoughAssist® Mechanical In-exsufflator Cough Machine
New HCPCS Code for the CoughAssist (formerly In-Exsufflator) |
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The Vest(TM) airway clearance system
News Release May 19, 2003 from Advanced Respiratory |
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To Trach or Not To Trach
By Vicki Cornelius, CRTT |
