This Section is Focused on the Critical Aspects of Respiratory Care for Patients with Spinal Muscular Atrophy.  

The booklet below was authored by Mary Schroth, M.D., a member of the Families of SMA Medical Advisory Council, and a leading expert on respiratory care for SMA patients.

Respiratory (breathing) problems are the leading cause of illness for children with SMA.  They are the most common cause of death for children with SMA Type I and SMA Type II.  Respiratory care interventions are essential to the survival and comfort of children with SMA. 

Click here to download the booklet:

This booklet reviews the following important topics:
- Why is respiratory care so important in SMA.
- What are common respiratory problems in children with SMA. 
- Elements of respiratory care management in SMA:
          -Assessment, evaluation and monitoring.
          -Breathing exercises for lung development.
          -Coughing practice for airway clearance.
          -Removal of mucus from airways and lungs.
          -Measuring oxygen levels.
          -Breathing support options.
          -Care during a cold.
          -Perioperative evaluation.
-What are special needs of children with SMA Type I.
- What are special needs of children with SMA Type II.
- What are special needs of children with SMA Type III.
- What respiratory equipment will you need at home.

If you would like a hard copy mailed to you please email us at info@fsma.org or call (800) 886-1762.

This booklet was produced with the kind support of the Angel Baby Foundation.

Dr. Mary Schroth has prepared two presentations that summarize key information on SMA respiratory care:

Respiratory Care Choices for SMA Type I's.

Keeping Your Lungs Healthy - Issues for SMA Type II's.

Please click to order a Daily Respiratory Care DVD.

Please click here for articles by John R. Bach, M.D. on Managing SMA by Non-Invasive Respiratory (NIV) Aids.

Last updated February 19, 2009.