John R. Bach, M.D.
Managing SMA by Non-Invasive Respiratory (NIV) Aids 

 Dr. John Bach is currently the Medical Director of the Center for Ventilator Management Alternatives at University Hospital (New Jersey), Professor of Neurosciences and Professor of Physical Medicine and Rehabilitation at UMDNJ-New Jersey Medical School (among other responsibilities.)

He has pioneered and promoted the use of ventilatory alternatives (including the In-Exsufflator or Cough-Assist™) for patients with SMA and other similar conditions. The purpose of using these alternatives is to prolong life and improve quality of life by avoiding a permanent tracheostomy. 

Rehabilitation of patients with neuromuscular disease, pulmonary disease, and home mechanical ventilation are the primary clinical focus of Dr. Bach, and he has authored more than 250 publications (including 7 books) on neuromuscular, pulmonary rehabilitation and noninvasive mechanical ventilation. He has lectured on these topics in over 30 countries.
 
To contact Dr. Bach, you may email him at bachjr@umdnj.edu or call his office at 973-972-2802.
HOWEVER, YOU SHOULD FIRST READ THE RELEVANT AREAS IN THE BOOK (Guide to the Evaluation and Management of Neuromuscular Disease). Dr. Bach is devoted to the care of children with neuromuscular disorders, but he does not have time to explain the basic principles of respiratory care to every parent who contacts him. You should also read all the articles listed here.

Three Recomended Books by Dr. Bach:

Management of Patients with Neuromuscular Disease
A great majority of people with neuromuscular diseases like muscular dystrophy, ALS, spinal muscular atrophy, myasthenia gravis and post-poliomyelitis continue to be told that they have "terminal illnesses" and are not offered management options that can spare them of cardiopulmonary morbidity and mortality. This book is unique in offering viable management alternatives that result in a patients prolonged survival and enhanced quality of life. Published in 2004.

Guide to the Evaluation and Management of Neuromuscular Disease
This book is designed to be read by parents as well as doctors, and includes good explanations and pictures.
 
Noninvasive Mechanical Ventilation
This book describes the use of inspiratory and expiratory muscle aids to prevent the pulmonary complications of lung disease and conditions with muscle weakness. Published in 2002.