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The goal of this Consensus Statement is to establish a practice guideline for the clinical care of SMA patients. It is the authors' intention that this document be used as a guideline, not as a practice standard for their care. The Standard of Care document is not a substitute for consultation with medical professionals. This document presents guidelines for care, but individual circumstances will guide treatment decisions in each patient's case. Just as each patient is unique, no single document can have all of the answers.
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Family Guide to Standard of Care in SMA
Includes recommendations for care of children with SMA. Covers: diagnosis, breathing, eating, nutrition, movement, daily exercise, and illness.
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Guía Familiar de la Norma de Atención en SMA
Incluye recomendaciones para el cuidado de los niños con AME. Cubiertas: diagnóstico, respirar, comer, la nutrición, el movimiento, el ejercicio diario, y la enfermedad.
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Standard of Care Article
The Family Guide is based on this Consensus Statement, published in the Journal of Child Neurology
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