The goal of this Consensus Statement is to establish a practice guideline for the clinical care of SMA patients. It is the authors' intention that this document be used as a guideline, not as a practice standard for their care.

The Standard of Care document is not a substitute for consultation with medical professionals. This document presents guidelines for care, but individual circumstances will guide treatment decisions in each patient's case. Just as each patient is unique, no single document can have all of the answers.