Connect with Families of SMA:

This booklet is intended to serve as a source of information and support for children and adults with Spinal Muscular Atrophy (SMA).
It was created by Families of SMA (FSMA). FSMA is dedicated to promoting and supporting research, helping families cope through informational programs and support, and educating the public and the medical community about SMA.

1. What Is Spinal Muscular Atrophy?
   
   
2. What Causes Spinal Muscular Atrophy?
   
   
3. Diagnosing Spinal Muscular Atrophy
   
   
4. What Can We Expect? What Does the Diagnosis Mean for an Individual?
   
   
5. I Am a Carrier of the SMA Gene ... What Can I Do?
   
   
6. How Families of SMA Can Help

If you know someone who has been recently diagnosed with SMA,  please e-mail infopack@fsma.org to request a free informational packet.