Our fundraising efforts drive all of the progress that we are able to make towards a treatment and cure for SMA. 

There is no current treatment for this often fatal disease.
1 in 40 people are carriers, over 7.5 million Americans. 
Quick facts about SMA.

We attempt to dedicate the majority of our funding directly towards SMA research.
See how we spend the funds raised.

FSMA has raised and then invested almost $40 million towards SMA research.
See how we fund research.

Thanks to our committed supporters we have made real progress towards practical treatments for SMA.   Families of SMA has funded 5 multi-center clinical trials for existing drugs that have potential for SMA.   We have directed and funded the leading new drug development program for a therapy specially designed to treat SMA.

Families of SMA has a network of 24 chapters throughout the United Sates that hold fundraising events throughout the year.

Our support comes from generous Donations and numerous Fundraising Events held by volunteer families. 
We have over 50,000 members and supporters.  FSMA is a collaborative organization where families and friends and researchers are all working together towards the same goal. 

Together we will beat this disease!