Our fundraising efforts drive all of the progress that we are able to make towards a treatment and cure for SMA.  We are focused solely on developing a treatment and cure for SMA.  We do not invest any of your funds towards other diseases. 

There is no current treatment for this often fatal disease.  1 in 40 people are carriers, over 7.5 million Americans. 
Quick facts about SMA.

We attempt to dedicate the majority of our funding directly towards SMA research.  Due to our thousands of volunteer families, we are able to dedicate over 80% of all funds raised to SMA research.
See how we spend the funds raised.

FSMA has raised and then invested $43 million towards SMA research.  Families of SMA is the leading charity raising and investing funds for SMA research. 
See how we fund research.

In 2009, the entire SMA community – families, patients, researchers, clinicians – will celebrate the 25th Anniversary of Families of SMA.  The story behind this anniversary – of its progress and accomplishments – is a story about dedication and determination.  A small group of parents started Families of SMA in 1984.  They wanted to raise funds for SMA research to cure the disease, and support all affected families.

Back then, very little was known about Spinal Muscular Atrophy.  It was frequently misdiagnosed.  Very little research was being conducted.  No one knew the cause of the disease let alone how to find a treatment and a cure.  There were no family support services and no clinical trials.  Patients and families affected by SMA were on their own and had little hope.

Today, FSMA has a different story to tell:  Families now have hope.  Our goal for 2009 is to have raised $50 million for SMA research.  Families of SMA funds and directs the leading SMA research programs.  Families of SMA has created hope for our community that did not exist in 1984.  Your support plays a critical role. 

Families of SMA has a network of 24 chapters throughout the United Sates that hold fundraising events throughout the year.

Our support comes from generous individual Donations and numerous Fundraising Events held by volunteer families and our chapters.  We have over 55,000 members and supporters.  FSMA is a collaborative organization where families and friends and researchers are all working together towards the same goal. 

Together we will beat this disease!