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Our fundraising efforts drive all of the progress that we are able to make towards a treatment and cure for Spinal Muscular Atrophy. Our efforts are focused solely on SMA. There is no current treatment for this often fatal disease. 1 in 40 people are carriers, over 7.5 million Americans.
Quick facts about SMA. FSMA has raised and then invested $50 million towards SMA research. Families of SMA is the leading charity raising and investing funds for SMA research.
Your fundraising helps Families of SMA make a difference every day! Your generosity continues to pave the way for new and innovative drug discovery programs and clinical trials that are now showing promise of a therapy for this terrible disease. Families of SMA is the leader in finding a treatment and a cure for SMA. Together, in 2010, we will accomplish the following: - Expand our investment in critical Spinal Muscular Atrophy research to grow the drug and clinical pipeline to increase our likelihood of finding a treatment and cure. - Provide direct support to hundreds of families with newly diagnosed children by sending them packets of important information and pieces of critical equipment. - Provide services to more than 70% of SMA families in the United States. - Host the nation’s largest gathering of those affected by SMA and the researchers working towards a treatment and cure at the 2010 Annual SMA Conference, bringing together hundreds of families and researchers from around the world to share ideas and hope for the future.
Your support plays a critical role. We will work together to find a treatment and cure for SMA. If you want to find local families and FSMA supporters in your area Families of SMA has a network of 27 chapters throughout the United Sates that hold fundraising events throughout the year. Our support comes from generous individual Donations and numerous Fundraising Events held by volunteer families and our chapters. We have over 65,000 members and supporters. FSMA is a collaborative organization where families and friends and researchers are all working together towards the same goal. 
Together we will beat this disease!
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