|
Families of Spinal Muscular Atrophy has been coordinating a National Awareness Month for SMA since 1996. Raising awareness of SMA in the general pulic can help lead to increased resources for SMA research and better care for SMA patients. The majority of people, including doctors, nurses and community members, do not know about SMA until it directly affects them. This is where you can help. There are numerous activities tha tyou can carry out in your local community to promote general awareness for Spinal Muscular Atrophy. Get involved today and engage your local area by writing an article for your newspaper or online publication, host a candlelight vigil or balloon release in honor of our SMA kids, contact your elected officials and request a proclamation stating August is SMA Awareness Month for your town or city. To help you with your planning, Families of SMA can provide you with several materials and templates. What you can do: Click here to view sample templates and ways to engage your local politicians.
Check out the available promotional materials to help you with your awareness event. Grass-roots efforts are the foundation of a successful awareness campaign. To learn more about what our SMA Community is doing, click the "2011 Awareness Events" link above.
"Honor SMA Angels"
Join with families around the country by lighting a candle at sunset on the second Saturday in August to remember and honor those who have lost their battle with SMA. 
The Davis Family posted orange and purple ribbons with SMA fact signs around their neighborhood in Indiana!
|