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Families of Spinal Muscular Atrophy has been coordinating a national awareness month for SMA since 1996. Raising awareness of SMA in the general public can help lead to increased resources for SMA research and better care for SMA patients. The majority of people do not know about SMA until it directly affects their family. Even the letters SMA don’t ring a bell with many doctors, nurses and community members. This is where you can help. There are many activities that you can carry out in your local community to promote general awareness of SMA. Plan to get involved and spread awareness of Spinal Muscular Atrophy with articles and flyers in your local community. You can download these materials, or email us at info@fsma.org or call the FSMA office at (800) 886-1762 for printed materials. What you can do: Plan to get involved and spread awareness of Spinal Muscular Atrophy with the Materials here.
(You can download these materials or call the FSMA office at 800-886-1762 for printed materials.)
Click here for additional awareness materials. Grass-roots Efforts are the foundation of this campaign.
Whether organizing bake or craft sales or setting up candlelight vigils to honor the children who have died, there are many ways to take proactive steps to help Families of SMA raise awareness to help find a treatment and cure.
"Honor SMA Angels"
Join with families and SMA organizations around the country by lighting a candle at sunset on the second Saturday in August to remember and honor those who have lost their battle with SMA.
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