Families of Spinal Muscular Atrophy has been coordinating a National Awareness Month for SMA since 1996. Raising awareness of SMA in the general pulic can help lead to increased resources for SMA research and better care for SMA patients. The majority of people, including doctors, nurses and community members, do not know about SMA until it directly affects them. This is where you can help.
There are numerous activities that you can carry out in your local community to promote general awareness for Spinal Muscular Atrophy. Get involved today and engage your local area by writing an article for your newspaper or online publication, host a candlelight vigil or balloon release in honor of our SMA kids, contact your elected officials and request a proclamation stating August is SMA Awareness Month for your town or city. To help you with your planning, Families of SMA can provide you with several materials and templates.
What you can do:
Click here to view sample templates and ways to engage your local politicians.