Hawk Island Park. Saturday, May 1, 2010 Help us develop a treatment and cure for Spinal Muscular Atrophy. You must register by April 15, 2010 to secure early registration fees.
Please note that T-shirts are only guaranteed for pre-registered participants. Additional t-shirts can be purchased for $12, please indicate the quantity and size. To attend the event or fundraise, please click the "Register or Fundraise" button to the right.
To make an online donation, please click the "Donate" button to the right. Spinal Muscular Atrophy is the number one genetic killer of children under the age of two. SMA is an inherited and often fatal disease that destroys the nerves controlling voluntary muscle movement, which affects crawling, walking, head and neck control, and even swallowing. Two new-born children are affected each day in the United States, approximately 1 in 6,000 live births. One in every 40 people carries the gene that causes SMA, which means there are more than seven million carriers in the United States alone. Currently there is no treatment or cure. Families of SMA is an international nonprofit organization founded in 1984 with the mission to find a treatment and cure for SMA. FSMA is made up of more than 65,000 members and supporters and has funded more than $50 Million in leading research programs since its inception.
Click here to learn more about Families of SMA and our programs. |
