ONLINE REGISTRATION IS NOW CLOSED. Registration will be available on event day starting at 9:00 am. We look forward to seeing you there!
Register or Donate Today to Help Us Find a Treatment and a Cure for Spinal Muscular Atrophy!
Raise a minimum of $50 and get an event day t-shirt!
Join us for a beautiful one mile walk and connect with SMA families!
Registration Fees: Adults (18 and Up): $20 Youth (17 to 3): $10 Child (2 and Under): FREE Individuals Affected by SMA: FREE
Want to reach that $50 fundraising goal? Ask your company if they will match your donation to Families of SMA.
Families of SMA is the world’s leader focused on funding SMA research to develop a treatment and cure for the disease. The successful results and progress that the organization has delivered, from basic research to drug discovery to clinical trials, provide real hope for families and patients impacted by the disease. The charity has invested over $55 million in research and has been involved in funding half of all the ongoing novel drug programs for SMA.
Families of SMA is a nonprofit 501(c)3 organization, with 31 Chapters and 90,000 members and supporters throughout the United States. The organization’s work has produced major discoveries, including identification of the underlying cause and a back-up gene for the disease, which provides a clearly defined target for disease altering therapies. The organization is also dedicated to supporting SMA families through networking, information and services and to improving care for all SMA patients.
Click here to learn more about Families of SMA and our programs.
If you have any questions, please contact Derek & Tina Lewis at (301) 703-8630 or firstname.lastname@example.org.