Saturday, September 28, 2013 Help us develop a treatment and cure for Spinal Muscular Atrophy
To attend the event or fundraise, please click the "Register or Fundraise" button to the right. To make an online donation, please click the "Donate" button to the right.
Join us for a crossfit-style workout in memory of Addison Bailey Faust who lost her battle with Spinal Muscular Atrophy (SMA), Type I, at only 6 months old. In celebration of Addie, Crossfit Maricopa will be hosting an event to benefit Families of SMA.
The crossfit-style workout will include seven (7) rounds of: one(1) deadlift (365/255), seven(7) burpees, 23 KB swings (53/35) and 25 double unders (or 75 singles).
Modifications can be made to the workout so all fitness abilities can participate. So grab your gear and LET’S GO!
Online Registration is now closed. However, you are welcome to register on race day! We hope to see you there!
Families of SMA is the world’s leader focused on funding SMA research to develop a treatment and cure for the disease. The successful results and progress that the organization has delivered, from basic research to drug discovery to clinical trials, provide real hope for families and patients impacted by the disease. The charity has invested over $55 million in research and has been involved in funding half of all the ongoing novel drug programs for SMA.
Families of SMA is a nonprofit 501(c)3 organization, with 31 Chapters and 90,000 members and supporters throughout the United States. The organization’s work has produced major discoveries, including identification of the underlying cause and a back-up gene for the disease, which provides a clearly defined target for disease altering therapies. The organization is also dedicated to supporting SMA families through networking, information and services and to improving care for all SMA patients.