Keeneland Race Course

Saturday, August 14, 2010
Help us develop a treatment and cure for Spinal Muscular Atrophy.

ONLINE REGISTRATION IS NOW CLOSED
If you would like to participate in this event, please contact Shana Foley at foley61805@gmail.com.

5K starts at 10:00AM

Kentucky Families of SMA was created to raise awareness of spinal muscular atrophy and provide support to local families and friends of those affected by the disease. Spinal muscular atrophy is an inherited and often fatal disease which destroy the nerves that command voluntary muscle movement. SMA is the leading genetic killer of children under the age of two. SMA affects a child's ability to crawl, walk, control head and neck, and even swallow and breathe. SMA afflicts one in 6,000 babies born and currently has no treatment or cure.

During our 2nd annual Lexington Walk-n-Roll campaign in 2007, we raised over $10,000 for research!

One in every 40 people carries the gene that causes SMA, which means there are more than seven million carriers in the United States alone. 

Click here for sponsorship information.

Families of SMA is an international nonprofit organization founded in 1984 with the mission to find a treatment and cure for SMA.  FSMA is made up of more than 65,000 members and supporters and has funded more than $50 Million in leading research programs since its inception.
Click here to learn more about Families of SMA and our programs.
http://www.fsma.org/AboutFSMA/

To attend the event or fundraise, please click the "Register or Fundraise" button to the right.
To make an online donation, please click the "Donate" button to the right.