Fort DeSoto Park 
Attention: Schedule Change - The Event Will Now Begin at 9:30 a.m. ONLINE REGISTRATION IS NOW CLOSED.
You can register at the event site beginning at 9:00 a.m. Saturday, October 23, 2010
Help us develop a treatment and cure for Spinal Muscular Atrophy. Please join the FSMA of Greater Florida Chapter as we celebrate our 2nd Annual Walk N Roll Event. This year’s event will be at the same fantastic location at Ft. DeSoto Park on the Gulf of Mexico. Click here for event flyer. We plan to have lots of wonderful food, entertainment and fun! Come join the Greater Florida Chapter as we work hard to raise money for a cure and beat our 1st year total of $11,000. This year our goal is $20,000! So get your teams ready to start fundraising! The Team with the highest amount raised will win a prize! Spinal Muscular Atrophy is the number one genetic killer of children under the age of two. SMA is an inherited and often fatal disease that destroys the nerves controlling voluntary muscle movement, which affects crawling, walking, head and neck control, and even swallowing. Two new-born children are affected each day in the United States, approximately 1 in 6,000 live births. One in every 40 people carries the gene that causes SMA, which means there are more than seven million carriers in the United States alone. Currently there is no treatment or cure. Families of SMA is an international nonprofit organization founded in 1984 with the mission to find a treatment and cure for SMA. FSMA is made up of more than 65,000 members and supporters and has funded more than $50 Million in leading research programs since its inception.
Click here to learn more about Families of SMA and our programs.
http://www.fsma.org/AboutFSMA/ To attend the event or fundraise, please click the "Register or Fundraise" button to the right.
To make an online donation, please click the "Donate" button to the right. |
