Sugartown Elementary School

ONLINE REGISTRATION IS NOW CLOSED.
Please register on the day of the event.

Sunday, September 25, 2011
Help us develop a treatment and cure for Spinal Muscular Atrophy.

To attend the event or fundraise, please click the "Register or Fundraise" button to the right.
To make an online donation, please click the "Donate" button to the right.

Zane's Run was started in 2009 in memory of Zane Schmid, the beautiful baby daughter of Keith and Hillary Schmid. Participants can choose to run/walk a one mile, 5k or 5 mile scenic course through beautiful Chester County, Pennsylvania. All proceeds from the event are donated directly to FSMA. For more information please visit zanesrun.com.

Early Registration ends on 8/30. Make sure to register before then to recieve the discounted registrated prices.

Starting on 9/1 prices will be:
Adult: $30 (T-shirt not guarenteed)
Seniors: $25 (T-shirt not guarenteed)
Kids 12 & Under: $15 (T-shirt not guarenteed)
Household:  $75 (T-shirts not guaranteed - family of 6)
(If you have 7 or more people in your household, please contact Meridith Bebee at zanesrun@gmail.org.)

Spinal Muscular Atrophy is the number one genetic killer of children under the age of two. SMA is an inherited and often fatal disease that destroys the nerves controlling voluntary muscle movement, which affects crawling, walking, head and neck control, and even swallowing. Two new-born children are affected each day in the United States, approximately 1 in 6,000 live births. One in every 40 people carries the gene that causes SMA, which means there are more than seven million carriers in the United States alone. Currently there is no treatment or cure. 

Families of SMA is an international nonprofit organization founded in 1984 with the mission to find a treatment and cure for SMA. FSMA is made up of more than 65,000 members and supporters and has funded more than $50 Million in leading research programs since its inception.

Click here to learn more about Families of SMA and our programs.