National Fundraiser Help us develop a treatment and cure for Spinal Muscular Atrophy Mama Bracelets started in 2010. Owner Lindsay Casten had the idea to provide mothers, who were nursing their children, a way to remember which “side” to start the next feeding on. She designed a personalized bracelet that slipped on and off the mother’s wrist easily (even with a baby in her arms) so they didn’t have to worry about remembering that particular feeding detail, as they have so many other things on their mind. Lindsay quickly designed other bracelets and necklaces with several options not only for nursing mothers, but for all women, men, and even children! Along the way, Mama Bracelets found its way into supporting and raising awareness for legitimate causes. To date, Mama Bracelets has raised funds and awareness for Rett Syndrome (The Rett Syndrome Foundation Grant), SIDS (The American SIDS Institute), Autism (Little Friends Inc. & Autism Speaks), and Lung Cancer (LUNGevity) through exclusive bracelet and necklace designs and sales. The owners of Mama Bracelets (Lindsay & Michael Casten) have three children (born in 2007, 2008 & 2010). Their youngest was diagnosed with SMA Type 2 in mid-August, 2011. In September of 2011, Mama Bracelets launched its “Cure SMA” bracelets that carry a 30% of sales donation directly to FSMA in efforts to help fund research for treatments and a cure for SMA. “Our hope lies in the fact that researchers will find effective treatments and a cure for all those kids who are affected by Spinal Muscular Atrophy”. ~The Casten Family Please visit www.mamabracelets.com to purchase your exclusive Cure SMA bracelet, featured in the video to the right.Spinal Muscular Atrophy is the number one genetic killer of children under the age of two. SMA is an inherited and often fatal disease that destroys the nerves controlling voluntary muscle movement, which affects crawling, walking, head and neck control, and even swallowing. Two new-born children are affected each day in the United States, approximately 1 in 6,000 live births. One in every 40 people carries the gene that causes SMA, which means there are more than seven million carriers in the United States alone. Currently there is no treatment or cure.
Families of SMA is an international nonprofit organization founded in 1984 with the mission to find a treatment and cure for SMA. FSMA is made up of more than 70,000 members and supporters and has funded more than $50 Million in leading research programs since its inception.
Click here to learn more about Families of SMA and our programs.
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