Tubman Garrett Riverfront Park

Sunday, May 13, 2012

Help is develop a treatment and cure for Spinal Muscular Atrophy

Please join our chapter in celebrating our 10 Year Anniversary by participating in the Delaware Marathon. On March 2, 2002 Jessica and Jason Moyer lost their beautiful son, Steven, to SMA Type I. They turned their grief into determination to support Families of SMA in finding a treatment and a cure for this devastating disease. They are challenging everyone to participate in some way either by forming a team, running individually or making donations to support the runners. Jessica and her husband will be running 26.2 miles in memory of Steven and all others affected by SMA. Please help them reach their goal of $50,000 and sign up to run today!!

Families of SMA - South Jersey/Delaware Chapter is running in the 2012 Delaware Marathon.  If you would like to have fun, raise money for a great cause and get your registration fee covered, then join us and help find a treatment and a cure for Spinal Muscular Atrophy. 

FREE registration and entry into the 2012 Delaware Marathon or Half Marathon, based on meeting a minimum fundraising goal of $500 per individual runner or $1,000 per relay team of four  by Friday, May 11, 2012. 

To register for a slot for the 2012 Delaware Marathon, Half Marathon or 4-person Relay, please click the "Register" button to the right.
Note: Each runner should register themselves ONLY, unless you are a relay team.  If you are a relay team, please select the "Relay Team" option.

To make an online donation, please click the "Donate" button to the right.
Deadline to Participate:  12:00 p.m. (EST) on Monday, April 2, 2012.

Spinal Muscular Atrophy is the number one genetic killer of children under the age of two.  SMA is an inherited and often fatal disease that destroys the nerves controlling voluntary muscle movement, which affects crawling, walking, head and neck control, and even swallowing.  Two new-born children are affected each day in the United States, approximately 1 in 6,000 live births.  One in every 40 people carries the gene that causes SMA, which means there are more than seven million carriers in the United States alone.  Currently there is no treatment or cure. 

Families of SMA is an international nonprofit organization founded in 1984 with the mission to find a treatment and cure for SMA.  FSMA is made up of more than 70,000 members and supporters and has funded more than $50 Million in leading research programs since its inception.

Click here to learn more about Families of SMA and our programs.