Saturday, March 23, 2013 Help us develop a treatment and cure for Spinal Muscular Atrophy
To donate to a specific walker or team, click on 'find a walker'; or simply click 'donate' to contribute to the walk.
Please join us as we Walk n' Roll to raise awareness for Spinal Muscular Atrophy (SMA) in honor of Logan Turner Moore.
Organize a team and set a fundraising goal to help us reach our goal of raising $5,000 toward a treatment and a cure for SMA!
Event Day Schedule 7:30 a.m. Event Day Registration 8:30 a.m. Registration Closes 9:00 a.m. Walk Begins!
On-site Registration (Over 5): $20 Online Registration is now closed! Registration will be available on event day!
SMA is the number one gentic killer of children under the age of two and until Fall of 2011, my family, myself included had never even heard of it. At that point, Logan was diagnosed with SMA and changed our lifes forever. Logan passed away just shy of his first birthday, March 21. This annual event is a celebration of his life. Please join us to celebrate his second birthday as we Walk n' Roll for SMA.
Families of SMA is the world’s leader focused on funding SMA research to develop a treatment and cure for the disease. The successful results and progress that the organization has delivered, from basic research to drug discovery to clinical trials, provide real hope for families and patients impacted by the disease. The charity has invested over $55 million in research and has been involved in funding half of all the ongoing novel drug programs for SMA.
Families of SMA is a nonprofit 501(c)3 organization, with 31 Chapters and 90,000 members and supporters throughout the United States. The organization’s work has produced major discoveries, including identification of the underlying cause and a back-up gene for the disease, which provides a clearly defined target for disease altering therapies. The organization is also dedicated to supporting SMA families through networking, information and services and to improving care for all SMA patients.
Click here to learn more about Families of SMA and our programs.
If you have any questions, please contact Layne Moore or Dana Grimstead at (919) 219-3925 or (919) 805-0335 or email at email@example.com.