Help is develop a treatment and cure for Spinal Muscular Atrophy
Families of SMA - South Jersey/Delaware Chapter is running in the 2013 Delaware Marathon. If you would like to have fun, raise money for a great cause and get your registration fee covered, then join us and help find a treatment and a cure for Spinal Muscular Atrophy. The Delaware Marathon and Half Marathon takes runners through the beautiful scenery of Tubman Garrett Riverfront Park.
FREE registration and entry into the 2013 Delaware Marathon or Half Marathon, based on meeting a minimum fundraising goal of $500 per individual runner, $1,000 per relay team of four or $2,000 per relay team of 8 by Friday, May 10, 2013. Registration for this event is now closed. To make an online donation, please click the "Donate" button to the right.
Families of SMA is the world’s leader focused on funding SMA research to develop a treatment and cure for the disease. The successful results and progress that the organization has delivered, from basic research to drug discovery to clinical trials, provide real hope for families and patients impacted by the disease. The charity has invested over $55 million in research and has been involved in funding half of all the ongoing novel drug programs for SMA.
Families of SMA is a nonprofit 501(c)3 organization, with 31 Chapters and 90,000 members and supporters throughout the United States. The organization’s work has produced major discoveries, including identification of the underlying cause and a back-up gene for the disease, which provides a clearly defined target for disease altering therapies. The organization is also dedicated to supporting SMA families through networking, information and services and to improving care for all SMA patients.
Click here to learn more about Families of SMA and our programs.