ONLINE REGISTRATION IS NOW CLOSED. Event day registration will be available starting at 9:00 AM. Help us develop a treatment and cure for Spinal Muscular Atrophy
To attend the event or register, please click the "Register or Fundraise" button to the right. To donate in support of a specific walker or team, click on 'Find a Walker', or simply click 'Donate' to contribute to the walk.
Come join the Greater NY Capital Region chapter for our 2nd Annual 5K, Walk & Roll! We are so excited to bring the community together in the fight against SMA. To make this a a friendly competition, we are asking every participant (family) to ask for sponsors to fundraise $250! You can create a team page here and have your sponsors donate directly on your page. The person, or team, that raises the most money will be recognized the day of the event. With every person you ask, you are raising awareness and helping us find a cure - so don't be shy!!
If registered on or before September 1, 2013: 5K Timed Runner (10 and Up): $30 5K/Walk Participant (11 and Up): $25 5K/Walk Participant (5-10): $10 5K/Walk Participant (Ages 4 and Under): FREE SMA Affected Individual: FREE
If registered after September 1, 2013 or on event day: 5K Timed Runner (10 and Up): $35 5K/Walk Participant (11 and Up): $30 5K/Walk Participant (5-10): $15 5K/Walk Participant (Ages 4 and Under): FREE SMA Affected Individual: FREE
Families of SMA is the world’s leader focused on funding SMA research to develop a treatment and cure for the disease. The successful results and progress that the organization has delivered, from basic research to drug discovery to clinical trials, provide real hope for families and patients impacted by the disease. The charity has invested over $55 million in research and has been involved in funding half of all the ongoing novel drug programs for SMA.
Families of SMA is a nonprofit 501(c)3 organization, with 31 Chapters and 90,000 members and supporters throughout the United States. The organization’s work has produced major discoveries, including identification of the underlying cause and a back-up gene for the disease, which provides a clearly defined target for disease altering therapies. The organization is also dedicated to supporting SMA families through networking, information and services and to improving care for all SMA patients.