Sat 12/07/2013 6:00 PM Norge Ski Club Clubhouse 100 Ski Hill Rd, Fox River Grove, IL 60021
Saturday, December 7, 2013
ONLINE TICKET SALES ARE NOWCLOSED. Tickets will be available at the door on event day.
Help us develop a treatment and cure for Spinal Muscular Atrophy
Music from the Early Baroque and Baroque by Castello, Frescobaldi, Kapsberger, Bach, Telemann, de Visee, Marais, and others for recorder and theorbo. The concert will last about 1 1/2 hours.
Mckenna is a sweet 2 year old little girl. In July of 2012 Mckenna was diagnosed with SMA (Spinal Muscular Atrophy) Type 1. Mckenna is a social butterfly that loves to smile and wave at everyone. Mckenna loves watching Disney movies and Yo Gaba Gaba. She loves going to the zoo, the aquarium, and to the pool along with many other places. Mckenna cannot move like a regular 2 year old, but that does not stop her from getting into mischief like 2 year olds like to do. SMA does not change who Mckenna is, but it does affect what she can do.
After Mckenna’s diagnosis in July 2012 Mckenna’s mom had to stop working to care for her, making paying for medical bills and even regular monthly bills very difficult. In addition to money being extremely tight, their family's financial need has increased. Mckenna’s medical expenses are very high. She relies on multiple pieces of medical equipment on a daily basis to help her breathe and eat.
Proceeds from ticket sales to the concert will benefit research and family support programs through Families of SMA. Further donations to support Mckenna's family and their medical expenses directly are welcome, and will be accepted on the night of the event. We recommend an additional donation of $10 to support the family's needs.
To purchase tickets for the event, please click the "Purchase" button to the right. To make an online donation to Families of SMA research and support programs, please click the "Donate" button to the right. To make a donation to Mckenna’s medical expenses, please do so at the event.
There are only 93 seats available for the event, so please purchase your ticket now to reserve your space!
Meet the Musicians: Mirja Lorenz
Born and raised in Luebeck, Germany, Mirja learned her first little melodies on the recorder when she was about five years old, on Sunday mornings in her mother’s bed (who also was a recorder player).
As an adult, Mirja first studied the recorder at Folkwang Musikhochschule in Duisburg/Germany with Gudrun Heyens, and later at the Hogeschool voor de kunsten in Utrecht/the Netherlands with Heiko ter Schegget. She also took master classes with high end recorder players, such as Marion Verbruggen, members of the Amsterdam Loeky Stardust Quartet, and others.
Mirja has performed in concerts in Germany, Sweden, Italy, Spain, the Netherlands, and Chicago. She was a founding member of several ensembles, including Trio Vertical Total, with whom she recorded a CD.
Besides playing, Mirja also taught the recorder in Germany, helping numerous students succeed in the “Jugend Musiziert” recorder competition.
After moving to the Chicago area, Mirja first focused on a Bachelor's Degree in English Literature which she earned with honors from Roosevelt University. After returning to her music, Mirja quickly began gaining ground in the Chicago Early Music scene. She performed with Music of the Baroque and is currently working on upcoming projects with Haymarket Opera and the Harper College orchestra.
Meet the Musicians: Joel Spears
Joel is an active lutenist and guitarist based in the Chicago area. He has performed both as a soloist and with ensembles of varying sizes, including Lyric Opera of Chicago, Chicago Opera Theater, Seraphic Fire, Ars Antigua, Bella Voce, Music of the Baroque, The Chicago Early Music Consort, Scholars of Cambrai, and Heroic Bard.
In addition to playing for numerous live radio broadcasts on 98.7-WFMT, he has appeared at the Brooklyn Academy of Music, the Chicago Cultural Center’s Preston Bradley Hall, the Bach Week in Evanston Festival, and the Handel Week Festival. Joel recently collaborated with composer Scott Gibbons on his soundtrack for the multimedia event, “Les Noces de Louis XIV” held at Versailles.
As a lecturer and performer, he has appeared numerous times at the Art Institute of Chicago, the Madison Early Music Festival, and as Guest Artist and Lecturer at Grand Valley State University. Joel is currently Lute Instructor at the Music Institute of Chicago, and Artistic Director of The Early Music Series at the Byron Colby Barn in Grayslake, Illinois.
About Families of SMA
Families of SMA is the world’s leader focused on funding SMA research to develop a treatment and cure for the disease. The successful results and progress that the organization has delivered, from basic research to drug discovery to clinical trials, provide real hope for families and patients impacted by the disease. The charity has invested over $55 million in research and has been involved in funding half of all the ongoing novel drug programs for SMA.
Families of SMA is a nonprofit 501(c)3 organization, with 31 Chapters and 105,000 members and supporters throughout the United States. The organization’s work has produced major discoveries, including identification of the underlying cause and a back-up gene for the disease, which provides a clearly defined target for disease altering therapies. The organization is also dedicated to supporting SMA families through networking, information and services and to improving care for all SMA patients.